Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2018

Medrol

Are there any PMR patients in the United States taking Medrol instead of prednisone? Will U.S. doctors prescribe Medrol instead of prednisone if requested by...

Are there any PMR patients in the United States taking Medrol instead of prednis...

skipspmr

•6 years ago

7 Replies

Tingling and numbness in legs

Pre PMR diagnosis I had an occasional numbness amd tingling in a oval shaped spot on my right thigh above my knee. The neurologist said it was because i was...

Pre PMR diagnosis I had an occasional numbness amd tingling in a oval shaped spo...

Sunnyd7

•6 years ago

25 Replies

Yo-yo Mama

60, 55, 50, 45... 60! Wait what? Too much too soon. Square one.

Hidden

•6 years ago

13 Replies

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Dowager Hump????

Always had particular problems with muscles in between shoulder blades walking slightly hunched. With the miracle of 15mgs pred following diagnosis of PMR this...

Always had particular problems with muscles in between shoulder blades walking s...

Marilyn1959

•6 years ago

9 Replies

Sub Optimal cortisone levels

Looking for some advice please. I hav Ebert taking prednisone for 2 years for PMR. I successfully tapered down slowly to the 5 mg that I am on now. Two...

Looking for some advice please. I hav Ebert taking prednisone for 2 years for PM...

NZShez

•6 years ago

2 Replies

Effects of Massage.

I’d like to share a positive outcome of a full body massage and would love to know if anyone else has had a similar experience. I’m starting my 4th year now...

I’d like to share a positive outcome of a full body massage and would love to kn...

Roltuba

•6 years ago

30 Replies

Adrenal glands showing interest in Body?

Low pred at 9-10 mg but with flare 12 at present - please ideas as to the sign's coming back -expected. John- I think I have had 1 or 2 ?

Low pred at 9-10 mg but with flare 12 at present - please ideas as to the sign's...

Hidden

•6 years ago

2 Replies

Gca steroid resistant

Hello. I have had GCA involving large arteries for about a year. I have been given infusions of methylprednisolone 3 days in a month for the last 4 months and...

Hello. I have had GCA involving large arteries for about a year. I have been giv...

Magavi

•6 years ago

17 Replies

Double vision?-sort of..... Pmr sufferer 5 year started Pred at 20 mg

I have been very tired of late-pushing down to 9mg pred but because of Christmas have had to increase from 10.5 to 12. over last few days. Pushed myself to go...

I have been very tired of late-pushing down to 9mg pred but because of Christmas...

Hidden

•6 years ago

7 Replies

PILL TAKING

just prescripedPREDNISOLONE TAPLETS , INSTRUCTIONS SAY TAKE EIGHT DO I TAKE THEM ALL AT ONCE OR SPREAD THEM OUT.

just prescripedPREDNISOLONE TAPLETS , INSTRUCTIONS SAY TAKE EIGHT DO I TAKE THEM...

DELBOY3939

•6 years ago

6 Replies

Life's a Journey

A recent post here got me thinking. In fact I'm a bit bemused at how I've accepted this PMR chapter. I've always been one to "kick against the pricks". In...

A recent post here got me thinking. In fact I'm a bit bemused at how I've accep...

HeronNS

•6 years ago

32 Replies

Uggghhh...I'm truly disgusted with my docs!

I have made an attempt to write this about 4 times now. I just don't know where to begin other than to say, I am truly disheartened in the midst of receiving...

I have made an attempt to write this about 4 times now. I just don't know where...

micheleinnaples

•6 years ago

10 Replies

TAP DANCING!!!

Ok. I have signed up for Tap Dance lessons with another friend who has bone loss. It is supposed to be GREAT for our bones!!! I begin in 10 days and will...

Ok. I have signed up for Tap Dance lessons with another friend who has bone loss...

yogabonnie

•6 years ago

5 Replies

My Path

We are strangers. Similar, yet different. Although we find ourselves “together" on this journey, we walk, as individuals, on very separate paths. And walk...

We are strangers. Similar, yet different. Although we find ourselves “togethe...

Hidden

•6 years ago

1 Reply

Eye test

I was diagnosed with PMR in May this year and then with possible GCA, after seeing a rheumatologist, in August. I developed double vision but my eye tests...

I was diagnosed with PMR in May this year and then with possible GCA, after seei...

Janann25

•6 years ago

19 Replies

Thanks

for all the responses to yesterday's post. All your experiences and insights are so welcome particularly the good advice about 'recovery' and pacing myself. I...

for all the responses to yesterday's post. All your experiences and insights are...

JaneEd61

•6 years ago

6 Replies

My Kefir Diary... Astounding results

I have been brewing my own probiotic coconut water Kefir for just over 3 months. Being wheat/gluten intolerant, cow diary intolerant, severely soya intolerant,...

I have been brewing my own probiotic coconut water Kefir for just over 3 months....

Poppy_the_cat

•6 years ago

8 Replies

Taking Omeprazol

I was not taking Zantac because it disagreed with me but have yogurt before prednisone. Ended up with GI inflammation and blood. Had to stay in hospital one...

I was not taking Zantac because it disagreed with me but have yogurt before pred...

Leeleep

•6 years ago

7 Replies

Doctors 😬locam absolutely waste of time

Today saw locam He was about as bright as a 2wat bulb Asked why I had come. I told him I was coming down off pred ,I said I was down to 4 and a half a day....

Today saw locam He was about as bright as a 2wat bulb Asked why I had come. I...

Rocketronzy

•6 years ago

31 Replies

Pouch on Neck

Wow am I confused and overwhelmed! Have had PMR for 3 1/2 yrs. On Pred but when tapering down inflammation markers go back up. It was discovered that I have an...

Wow am I confused and overwhelmed! Have had PMR for 3 1/2 yrs. On Pred but when ...

PMRinsdca

•6 years ago

6 Replies

Pmr

Hi I am new, my name is Maz. Back last year in March I started to have pains in the back of my legs and also my arms started to hurt from the sho uhh elders...

Hi I am new, my name is Maz. Back last year in March I started to have pains in ...

Nursemaz

•6 years ago

19 Replies

PET and Cortecosteroids

I have received my appiontment for a PET-CAT for the 12 of Feb which I had planned on cancelling after learning on here that PET scans dont work on patients...

I have received my appiontment for a PET-CAT for the 12 of Feb which I had plann...

Gaijin

•6 years ago

17 Replies

Links to recent GCA/PMR info:

There have been some excellent links posted recently but unfortunately I never seem to be able to find them later! One particular one was a paper by Dasgupta...

There have been some excellent links posted recently but unfortunately I never s...

podo

•6 years ago

11 Replies

Pins n needles

Regarding question on pins n needles I was admitted to QE hospital in gateshead with severe pins n needles due to dangerously low calcium low magnesium n low...

Regarding question on pins n needles I was admitted to QE hospital in gateshead ...

sissymcardle

•6 years ago

4 Replies

Tried to taper again but pain returns

Started on 15mg Pred at the beginning of June 2017. I reduced Pred from 15mg And got down to 8mg but the pain became unbearable so back to 15mg. Then on Rheumy...

Started on 15mg Pred at the beginning of June 2017. I reduced Pred from 15mg And...

Footfairy-1

•6 years ago

17 Replies

The Ultimate Betrayal

Those that can't do, rant. https://rantingsofamadwomanblog.com/2018/01/04/the-ultimate-betrayal/

Those that can't do, rant. https://rantingsofamadwomanblog.com/2018/01/04/the-u...

Hidden

•6 years ago

13 Replies

Dead slow reduction problems

I have been diligent with dead slow reduction process, I am down to 7mg from 20 Mg in 9 months, having hip replacement in March and they suggest to get down as...

I have been diligent with dead slow reduction process, I am down to 7mg from 20 ...

jevuki

•6 years ago

21 Replies

Nitrofurantoin linked with constipation?

Hi I've been on Nitrofurantoin for a few days and am having quite bad constipation, not sire if this is to do with the medication? Has anyone else had anything...

Hi I've been on Nitrofurantoin for a few days and am having quite bad constipati...

V-alex12

•6 years ago

3 Replies

Glasgow meeting

The next Glasgow meeting will take place on 8th January at 10am in Health and Social Care Alliance Scotland, Venlaw Building, 349 Bath Street, Glasgow G2...

The next Glasgow meeting will take place on 8th January at 10am in Health and S...

Kilmuir

•6 years ago

1 Reply

New to GCA and still in shock

Hi everyone, I was diagnosed just before Christmas with GCA thanks to my very thorough GP and rapid referral to Rheumatology. My main problems were a constant...

Hi everyone, I was diagnosed just before Christmas with GCA thanks to my very th...

JaneEd61

•6 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

Medrol

Tingling and numbness in legs

Yo-yo Mama

Dowager Hump????

Sub Optimal cortisone levels

Effects of Massage.

Adrenal glands showing interest in Body?

Gca steroid resistant

Double vision?-sort of..... Pmr sufferer 5 year started Pred at 20 mg

PILL TAKING

Life's a Journey

Uggghhh...I'm truly disgusted with my docs!

TAP DANCING!!!

My Path

Eye test

Thanks

My Kefir Diary... Astounding results

Taking Omeprazol

Doctors 😬locam absolutely waste of time

Pouch on Neck

Pmr

PET and Cortecosteroids

Links to recent GCA/PMR info:

Pins n needles

Tried to taper again but pain returns

The Ultimate Betrayal

Dead slow reduction problems

Nitrofurantoin linked with constipation?

Glasgow meeting

New to GCA and still in shock

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