I have received my appiontment for a PET-CAT for the 12 of Feb which I had planned on cancelling after learning on here that PET scans dont work on patients that are taking prednisone. Since I am feeling increasingly unwell and bed/sofa bound, I re visited this article about the PMR/GCA spectrum.
In it, I think it says that F-FDG PET "demonstrates tracer - uptake in large vessels" promoting the revision of PMR DX toward GCA.
So now I'm thinking that when revising a patient with a PMR diagnosis, wouldn't that patient no longer be steroid- naive?
Im not sure if the PET they are doing on me is the same as the F-FDG PET. I was told that the test would require a contrast dye which maybe" F-FDG" refers to?
Meanwhile, I remembered that a friend of my husband is a cardio vascular surgeon that for some reason never operated and only does Doppler. He would gladly do one on me as soon as I ask him to, to rule out GCA, but I'm not sure if he would be capable of doing it for GCA, as in all the literature I've read, it says the doctor/technician performing the dopplar have to be specifically trained.
Good thing PMR. /GCA is rare here in Spain.. No one takes me seriously while I keep reading posts on the forums that my current symptoms constitute a medical emergency.