Wow am I confused and overwhelmed! Have had PMR for 3 1/2 yrs. On Pred but when tapering down inflammation markers go back up. It was discovered that I have an Aortic Aneurysm by my cardiologist but said not to worry, it was small. My Rheumy saw that and thought maybe I have GCA. I have no other GCA symptoms, however she thinks my problem with tapering down is a sign that it's more than PMR. She wants me to start on Methotrexate. I'm not convinced. Anyone taken that?
Also I have Swollen Clavicle Joints and that darn SOFT POUCH in between. I saw that others have that soft pouch as well... has anyone else had swollen clavicle joints? I have not gained weight so the neck thing is very noticeable. I recently tested positive for RA but again have no other symptoms other than swollen clavicle joints. Doctors can't seem to figure out what's going on. Seeing the cardiologist today to get his opinion on the GCA diagnosis.
My rheumy put me on Hydroxychloriquine back on Nov. 1, 2016. Supposed to start on Methotrexate (don't want to) and stop the Hydroxy, then taper down the Pred. I had gotten down to 2 mg around Aug/Sept but had a flair up. Also had been getting cortisone shots which I stopped. Now back up 15 mg and the Hydroxy and feeling ok, just tired.
Anyone have any input or similar problems? What other drugs have you all tried anyone try the Biologics out there?
Thank you. Sorry this is long, but it's complicated!