So I saw the rheumatologist last week he did x ray and lots of prodding and getting me to do different excercises and concluded not pmr but frozen shoulder. Started me to reduce my steriods again - last month GP got me to reduce from 15mg to 10 mg - consultant reduced from 10mg - 7.5mg this month - 5mg in November - 2.5mg in December 0mg by January.
So I started on saturday now days in and I feel dreadful in alot of pain nausea, hot and cold sweats, cronic back ache ...yuk had to come home from work cos I felt so vacant. Spoke with a GP today and she feels the taper is too much and want me to try 9mg ....so heres hoping.
Dropping to 10 was tough but I was determined to see it through because I am a diabetic and I was worried about Blood sugars - in fact they are fine same as pre steriod level and show good control !!
I have had 3 lots of injections in my shoulder the first in august done by GP was fine and helped me beable to swim in the wonderful warm carribean sea ( yes I has a great holiday in Tobago swiming 4 -5 x a day heaven) the consultant gave me 2x injections last friday and they hurt and not much help- im feeling broken again
I have got physiotherapy assessment in a week but dont know if its frozen shoulder or PMR ? GP told me to let consultant know about the with draw symptoms I have experienced as it might make a difference to his dx
Sorry to ramble but I thought id update my journey to you all