Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for October 2017

Now my teeth are falling out:)

Hi everyone I haven’t written for a few weeks! I am now down to 6.5mg of prednisolone after going up on good advice. I have at last come to terms with the...

Hi everyone I haven’t written for a few weeks! I am now down to 6.5mg of predn...

JulieR2

•7 years ago

15 Replies

Prostate

What is the best way to deal with binnine prostate inflammation and associated bladder pain symptoms I have been using saw palmetto ??

What is the best way to deal with binnine prostate inflammation and associated b...

musicman0077

•7 years ago

8 Replies

Feeling down and burning up

Hello fellow sufferers I'm feeling pretty frustrated this afternoon, having had to cancel all my plans for today after feeling more pain than usual and...

Hello fellow sufferers I'm feeling pretty frustrated this afternoon, having had ...

Zebedee44

•7 years ago

47 Replies

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Low carb diet?

Feeling really well today, early days though am 11 days in on 15 mg pred. I've picked up on a low carb diet being a good thing to follow. Any advice on this...

Feeling really well today, early days though am 11 days in on 15 mg pred. I've p...

Alison300356

•7 years ago

10 Replies

My journey continues

Hi everyone, Had my monthly appointment with my rheumatologist yesterday. She said I absolutely need a flu shot and said I may or may not feel a bit flu-y. I...

Hi everyone, Had my monthly appointment with my rheumatologist yesterday. She s...

Marie1479

•7 years ago

18 Replies

i have run out of coping mechanisms.

Hello Dear Friends, I am 20 months into the PMR journey. Pain isn't so much an issue anymore just occasionally as well as some stiffness. I am 5 days on 11.5...

Hello Dear Friends, I am 20 months into the PMR journey. Pain isn't so much an i...

bunnymom

•7 years ago

37 Replies

Predn at 2am

Well after a comment from PMRpro in my first post I thought I'd give a 2am dose a go. Well I was awake at 2am this morning and had taken drugs, a drink and a...

Well after a comment from PMRpro in my first post I thought I'd give a 2am dose ...

JulianJ

•7 years ago

7 Replies

4mg pred....a cold...increase dose?

In hindsight I think I may be a bit foolish/reckless. I have had a cold this week and wondering whether I should up the Pred? With HC, it would be to double...

In hindsight I think I may be a bit foolish/reckless. I have had a cold this wee...

karools16

•7 years ago

5 Replies

Goundhog day! New nhs rheumatologist seems to be clone of old one

Saw new consultant on thursday, turns out this was a routine appt not the urgent one A and E were supposed to make after treating me for sepsis, this is the...

Saw new consultant on thursday, turns out this was a routine appt not the urgent...

Cally55

•7 years ago

8 Replies

Editing Profile Doesn't Stick

I'm wondering if I need to be a member of the forum for a while before the edits I have tried to make will stay put. I have tried it a couple of times, clicked...

I'm wondering if I need to be a member of the forum for a while before the edits...

Jo_Lyn

•7 years ago

9 Replies

Polly myalgia rumatical.

HI all, I a newby to the forum. For almost a year I have been suffering from terrible ache's in my leg muscles and backside. After many visits to Dr and...

HI all, I a newby to the forum. For almost a year I have been suffering from ter...

Jcdel

•7 years ago

12 Replies

Pred taper

Hi all I regularly follow the posts and find all the information on here so helpful. I was diagnosed in April and i started on 30mg then down to 20mg then...

Hi all I regularly follow the posts and find all the information on here so h...

MichelleH16

•7 years ago

5 Replies

Bruises

Hello Everyone, just wondered if it's the Pred that causes my legs to have dark purple / red patches that appear at the slightest bump or if I catch my leg on...

Hello Everyone, just wondered if it's the Pred that causes my legs to have dark...

Tonysue

•7 years ago

13 Replies

The Lighter Side - 'Uncle' MB's Weakly News In-Digest... ;-)

Greetings to You Lot of Polyphilandererers, Pred-Perambulators and GP GBH victims. I hope you're all looking forward to a relaxing weekend - as far as one can...

Greetings to You Lot of Polyphilandererers, Pred-Perambulators and GP GBH victim...

markbenjamin57

•7 years ago

50 Replies

Update

Hello Just thought some of you would be interested in my update, My Dr who said I had a heart murmur fast tracked me to see a Cardiologist who confirmed the...

Hello Just thought some of you would be interested in my update, My Dr who said...

bowler

•7 years ago

8 Replies

Rheumatologist still insisting on a quick reduction of steroids

Hello Everyone I have had to increase my Prednisolone to 4mgs due to some symptoms returning. Now told to remain on this dose for two more weeks then reduce by...

Hello Everyone I have had to increase my Prednisolone to 4mgs due to some sympto...

ValFF53

•7 years ago

12 Replies

MARRIED TO A DAVID.

Just read an old post of PMRpro about a lot of you being married to a David, how funny I am as well.

Just read an old post of PMRpro about a lot of you being married to a David, how...

Cheshy72

•7 years ago

15 Replies

Hello, I've just joined.

Hi, As you can guess I have PMR, I was diagnosed early in the year. My doctor started me on 15mg prednisolone, 2 x 600mg Accrete D3 and 70mg Alendronic Acid....

Hi, As you can guess I have PMR, I was diagnosed early in the year. My doctor st...

JulianJ

•7 years ago

54 Replies

Newly vaccinated babies.

Is it true that we should not go near newly vaccinated babies?

Leeleep

•7 years ago

10 Replies

How long after stopping methotrexate do you need to carry on taking folic acid

I've stopped taking methotrexate but I'm really unsure If I need to take folic acid still or not i haven't had either of the drugs for about 3 weeks now and I...

I've stopped taking methotrexate but I'm really unsure If I need to take folic a...

Beth12345679

•7 years ago

2 Replies

Why a bone scan?

A month ago I was phoned by GP to say vitamin D levels low and advised me to take over the counter high dose. Then today I went to see GP and he has referred...

A month ago I was phoned by GP to say vitamin D levels low and advised me to tak...

cassie1208

•7 years ago

7 Replies

Still no prednisolone

Pleased to say it was a month yesterday since I stopped prednisolone and so far so good. No signs of GCA reappearing. Good luck to those treading the same...

Pleased to say it was a month yesterday since I stopped prednisolone and so far ...

DevonMichael

•7 years ago

15 Replies

Blood work

Hi How often should you have your blood work done. After diagnosis in June only had it taken 2 times due to high white blood count. Now taperered from 20mg...

Hi How often should you have your blood work done. After diagnosis in June onl...

ali5son

•7 years ago

30 Replies

Cut Pred too quickly!

I have had PMR for 2 years and I gradually cut down to 2mg a day pred about a month ago. Since then I have moved house ( I know I should not have cut during...

I have had PMR for 2 years and I gradually cut down to 2mg a day pred about a mo...

cassie1208

•7 years ago

17 Replies

"Prednisone Dependant" question

I would greatly appreciate knowing exactly what "prednisone dependant" means, and what the repercussions are. After a flare in the spring, my specialist said...

I would greatly appreciate knowing exactly what "prednisone dependant" means, an...

lindaoquilts

•7 years ago

12 Replies

My city is on fire

Saw my doc again last week and she wants to do a bunch of labs to make sure nothing has been missed.. Now we will have to wait to see if my clinic and...

Saw my doc again last week and she wants to do a bunch of labs to make sure not...

Hidden

•7 years ago

46 Replies

Coated prednisone

My GP's pharmacist had ordered the coated preds but they had not arrived by the time I needed them so I had to resort to the uncoated ones. She gave me the...

My GP's pharmacist had ordered the coated preds but they had not arrived by the ...

tgca

•7 years ago

7 Replies

Very confused Chessington Newby

Hi everyone Went to have a meeting (I thought) about plans for a GCA biopsy today. The neurologist I saw was rushed off his feet and briefly said something...

Hi everyone Went to have a meeting (I thought) about plans for a GCA biopsy tod...

MelodySue

•7 years ago

22 Replies

Shoulder pain

I keep getting a very sharp pain top of my left shoulder, just want to lie down it eases off after a while, any ideas? Tia

I keep getting a very sharp pain top of my left shoulder, just want to lie down ...

Lilltenanny

•7 years ago

1 Reply

International Space Shuttle

Good Evening to fellow sufferers! We are in North Wales and have just watched the ISS go over. It made me think how many of you might be watching and I send...

Good Evening to fellow sufferers! We are in North Wales and have just watched ...

Hidden

•7 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Now my teeth are falling out:)

Prostate

Feeling down and burning up

Low carb diet?

My journey continues

i have run out of coping mechanisms.

Predn at 2am

4mg pred....a cold...increase dose?

Goundhog day! New nhs rheumatologist seems to be clone of old one

Editing Profile Doesn't Stick

Polly myalgia rumatical.

Pred taper

Bruises

The Lighter Side - 'Uncle' MB's Weakly News In-Digest... ;-)

Update

Rheumatologist still insisting on a quick reduction of steroids

MARRIED TO A DAVID.

Hello, I've just joined.

Newly vaccinated babies.

How long after stopping methotrexate do you need to carry on taking folic acid

Why a bone scan?

Still no prednisolone

Blood work

Cut Pred too quickly!

"Prednisone Dependant" question

My city is on fire

Coated prednisone

Very confused Chessington Newby

Shoulder pain

International Space Shuttle

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