To give some background.
Ill since Nov 16 query GCA. Managed to go fro 40mg pred to 15mg and around a month ago knee pain and pains in hips, buttocks thighs etc. Told by rheumy nurse to go up to 25. Can't seem to come down from that. I am seeing the rheumatologist on 25th.
GP feels it is PMR and so does Rheumy nurse.
At the moment struggling with how little I can do without pains returning on the same day. At the moment my bottom half is okish. My shoulders become very sore after the smallest of tasks along with my forearms, wrists
And hands. My hands also become very stiff and quite puffy. I am extremely tired but waking during the night for a few hours most nights.. is this familiar to anyone or is there something else going on