Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for August 2017

Jeanmh

Hello can anyone tell me how often should you have blood test done not had one done for two months .I was diagnosed with GCA end of October 2016 was put on 60...

Hello can anyone tell me how often should you have blood test done not had one d...

Jeanmh

•7 years ago

19 Replies

Eyes and blurred vision

I am worried about my deteriorating vision. Am tapering between 3 and 4 mgs successfully but am getting double vision ( very noticeable when driving) and...

I am worried about my deteriorating vision. Am tapering between 3 and 4 mgs succ...

kezzybabes

•7 years ago

38 Replies

Painful joints

The following is from the Vasculitis Foundation. I find it very interesting that there's no mention of muscles. They talk about the joints. I personally feel...

The following is from the Vasculitis Foundation. I find it very interesting that...

tiasbear

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Help me understand this? LOL

I belong to Kaiser in the US. I wrote an email to my Rheumy yesterday about tapering. This was my email to her. "Today is the first day of my next taper,...

I belong to Kaiser in the US. I wrote an email to my Rheumy yesterday about t...

Hindags

•7 years ago

10 Replies

Need Advice

I am 52, diagnosed with RA about 1 yr ago , suffered for a year before that. very hard to walk at times, sometimes I couldn't hold a cup of coffee. Doctor gave...

I am 52, diagnosed with RA about 1 yr ago , suffered for a year before that. ver...

danvb

•7 years ago

4 Replies

Update Depression...,

Saw my Rheumatologist today - seriously don't know why I pay him over £200 for less than 15 minutes! He said I must speak to my GP about the depression. Said...

Saw my Rheumatologist today - seriously don't know why I pay him over £200 for l...

Slosh

•7 years ago

39 Replies

Parkers New Game

Ta Da it's a paint stirrer tool. Not an African Wldebeest Comb as I first thought.

Ta Da it's a paint stirrer tool. Not an African Wldebeest Comb as I first thoug...

Estellemac

•7 years ago

14 Replies

Prednisone Dosage

When I first encountered this support group I thought my goodness, there are lay people giving out medical advice and I thought that was so out of order....

When I first encountered this support group I thought my goodness, there are la...

Alfryd

•7 years ago

14 Replies

Parker and his New Game

A couple of weeks ago I had a sore throat. I haven't had a sore throat in years since I had me tonsils out as a kid. Thanks to steroids I have now got another...

A couple of weeks ago I had a sore throat. I haven't had a sore throat in years ...

Estellemac

•7 years ago

15 Replies

Blood Pressure Advice

Please ensure that your blood pressure is tested in each arm and take note of any difference in reading especially greater than 10. If this happens...

Please ensure that your blood pressure is tested in each arm and take note of an...

SheffieldJane

•7 years ago

53 Replies

Cramp in buttocks

I have been on this journey for 2 yrs now, reducing very slowly from 10 to 9.5 at the moment. After the 3rd week severe pain in left thigh returned so I have...

I have been on this journey for 2 yrs now, reducing very slowly from 10 to 9.5 a...

Marcy47

•7 years ago

14 Replies

Myofacial syndrome and Prednisone taper

Hi folks, I'm still on 6 mg prednisone after 4 years with PMR . I'm tapering very slowly, 5.5-6 using the dead slow method, and usually take 2-3 months to...

Hi folks, I'm still on 6 mg prednisone after 4 years with PMR . I'm tapering ve...

1Purplecrow

•7 years ago

10 Replies

Off the Prednisolone but still have pain

Hi, Only my second post but I am in a similar situation again. I got off the Prednisolone in March with a few niggles the doctor said was " a little wear and...

Hi, Only my second post but I am in a similar situation again. I got off the Pr...

Brenmel

•7 years ago

22 Replies

The "Evil Steroid"

Hello All, Just out of hospital with a final diagnosis of PMR. I went in on Monday morning by ambulance after being very very sick all that night. My CRP...

Hello All, Just out of hospital with a final diagnosis of PMR. I went in on Mo...

Christinemac

•7 years ago

10 Replies

Munchies

Had just had to up pred due to flare up and the dreaded munchies are back. From early morning til 6pm I am good and stick to sensible foods . However AFTER I...

Had just had to up pred due to flare up and the dreaded munchies are back. From ...

Jude62

•7 years ago

10 Replies

confused

Inflammatory markers down to normal on 12 but I still have PMR symptoms. using slow method to reduce from 12 to 11 and symptoms getting worse. GP saying if...

Inflammatory markers down to normal on 12 but I still have PMR symptoms. using ...

tinwoman

•7 years ago

17 Replies

Good doctor visit

I grumbled a couple of months ago about my doctor who told me to finish up my pred pills then stop and see what happened. I did in fact have enough pills to...

I grumbled a couple of months ago about my doctor who told me to finish up my pr...

HeronNS

•7 years ago

14 Replies

And I'm off...

I saw a different rheumatologist, as last was on maternity leave. I was shocked ; statements so hurtful, though for most comments I was able to stand up to...

I saw a different rheumatologist, as last was on maternity leave. I was shocked ...

klairv0yant

•7 years ago

10 Replies

Walking mystery

Hope my friends here can shed some light on this question. I find it difficult to walk very far. I don't have any muscle pain or balance problems. I just...

Hope my friends here can shed some light on this question. I find it difficult ...

bunnymom

•7 years ago

36 Replies

CBD OIL

Good Morning all, I am in the dead slow reduction of prednisone having been on 20 mg for 2 years now down to 13 mg. I am experimenting with gabapentin and...

Good Morning all, I am in the dead slow reduction of prednisone having been on 2...

jevuki

•7 years ago

44 Replies

Help

Sorry to be asking this as I believe it has been posted a couple of times before but I found it the first day I joined this forum and unfortunately did not...

Sorry to be asking this as I believe it has been posted a couple of times before...

joat

•7 years ago

11 Replies

advice and help please

What I'm about to seek guidance on, I'm not sure whether this has anything to do with my PMR. On Tuesday night I had a pain on my right foot on the outside...

What I'm about to seek guidance on, I'm not sure whether this has anything to do...

Bobbury

•7 years ago

4 Replies

Drop or not...

Hi there, I'm due to drop to 15 mg this week from 17.5 but have been having some aches in my shoulder, mainly in the morning. Do I drop anyway or do I hang on...

Hi there, I'm due to drop to 15 mg this week from 17.5 but have been having some...

Suzan62

•7 years ago

17 Replies

Shoulder and back pain

Hi Everyone, First of all I would like to thank everyone for sharing their experiences with PMR. I have found it very helpful in understand the disease. I...

Hi Everyone, First of all I would like to thank everyone for sharing their exper...

Hidden

•7 years ago

3 Replies

Yet another infection!

Hi all I have been on pred since Dec 2016 (started on 15mg and now tapering to 5mg). I seem reasonably OK generally but have had at least 8 courses of...

Hi all I have been on pred since Dec 2016 (started on 15mg and now tapering to 5...

Hidden

•7 years ago

52 Replies

No Longer Getting Daily Updates

Hello All I looked forward to reading the daily messages that I received through e-mail. They have suddenly stopped and I don't know why or how to reinstate...

Hello All I looked forward to reading the daily messages that I received through...

ValFF53

•7 years ago

5 Replies

Volunteers for Research Project into fatigue in PMR and GCA Leeds, UK

I have just completed my few month stint as a volunteer for research into the fatigue associated with our conditions. It involved travelling to Wharfdale...

I have just completed my few month stint as a volunteer for research into the fa...

SheffieldJane

•7 years ago

9 Replies

Tens or massage foot machine for relief

Other PMR people have raised the problems of cold, painful, ankle swelling ,and cannot feel the car Pedals - has any fellow sufferers found relief in the use...

Other PMR people have raised the problems of cold, painful, ankle swelling ,and...

Hidden

•7 years ago

9 Replies

pmr

Hi . I am just wanting to know if anyone can help . I'm suffer with PMR and fined it hard walking around outdoors when having bad days . I feel my pain reduces...

Hi . I am just wanting to know if anyone can help . I'm suffer with PMR and fine...

KathleenJohnson107

•7 years ago

6 Replies

Stopping Methotrexate - one more blood test?

With Dr H's blessing (by email) I have decided to stop taking MTX. I don't feel it is making any difference to my Pred taper and would rather take less drugs...

With Dr H's blessing (by email) I have decided to stop taking MTX. I don't feel...

SusyTe

•7 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Jeanmh

Eyes and blurred vision

Painful joints

Help me understand this? LOL

Need Advice

Update Depression...,

Parkers New Game

Prednisone Dosage

Parker and his New Game

Blood Pressure Advice

Cramp in buttocks

Myofacial syndrome and Prednisone taper

Off the Prednisolone but still have pain

The "Evil Steroid"

Munchies

confused

Good doctor visit

And I'm off...

Walking mystery

CBD OIL

Help

advice and help please

Drop or not...

Shoulder and back pain

Yet another infection!

No Longer Getting Daily Updates

Volunteers for Research Project into fatigue in PMR and GCA Leeds, UK

Tens or massage foot machine for relief

pmr

Stopping Methotrexate - one more blood test?

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