Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,026 posts

All posts for August 2017

Fatigue

Down to 3 and a half pred a day, dropping a half every 2 months a suggested by rheumatologist. I have had PMR for three years now. However, I feel totally...

Down to 3 and a half pred a day, dropping a half every 2 months a suggested by r...

Patricia10

•7 years ago

9 Replies

Tapperin Down of Prednisolone.

What's a good program? I have gone from 15 to 10mg to day. I suppose I could do with some ones and 2.5 mg. I bet my Doc will want me off...

What's a good program? I have gone from 15 to 10mg to day. I suppose ...

Rocketronzy

•7 years ago

13 Replies

Well something has to change...month 4 update.

Hello all, You might remember me from my frustrated and angry post 2 months ago. Thanks to this wonderful forum I have learned to pace and start to accept...

Hello all, You might remember me from my frustrated and angry post 2 months ago....

Tj2017

•7 years ago

26 Replies

Want to take advantage of all our features? Just log in!

Product recommendations for a little happiness boost?

Is anyone interested in swapping recommendations of products for those days when we might need a little boost? For example, I love beauty products and have...

Is anyone interested in swapping recommendations of products for those days when...

SusyTe

•7 years ago

78 Replies

Grasping at straws

Has anyone tried, or knows someone who has tried, using a VR headset as a way of trying to kick start the adrenal glands? For example yesterday on GMB tv a...

Has anyone tried, or knows someone who has tried, using a VR headset as a way of...

Ventdunord

•7 years ago

19 Replies

GCA and thyroid

Can anyone advise me as to whether possible thyroid problems are/could be related to pred? I am awaiting blood results. Have a good night everyone zzzzzzzzzzzz

Can anyone advise me as to whether possible thyroid problems are/could be relate...

tgca

•7 years ago

5 Replies

Feeling a little more positive!!

Good evening all, I hope you are all having a good evening, just thought I'd touch base as I went and saw Dr Rod Hughes again privately at Chertsey after my...

Good evening all, I hope you are all having a good evening, just thought I'd to...

Trixiechamp

•7 years ago

18 Replies

Dexascan

Well done .... you would have been on a drug you didn't need! My results were below average... they were before starting steroids but having another scan...

Well done .... you would have been on a drug you didn't need! My results were ...

shella

•7 years ago

Be the first to reply

Well worth a Dexa Scan to see if Bisphosphontes are essential!

My GP has been pressurising me to take Alendronic Acid and I have been resisting. She sent me to Dr Peel at the Northern General Hospital with notes designed...

My GP has been pressurising me to take Alendronic Acid and I have been resisting...

SheffieldJane

•7 years ago

54 Replies

Parker and the Bat Moth

Sitting quietly in my living room last night I saw a giant Bat sized Moth fly in to my hallway. Not being able to move with a dodgy hip I started screaming...

Sitting quietly in my living room last night I saw a giant Bat sized Moth fly in...

Estellemac

•7 years ago

23 Replies

Do you know a good Rheumy in Chessington Area?

Hi All, my sister in law is looking for a Rheumy. We think she has PMR. She has had all the usual exploration tests for arthritis etc, all of which are...

Hi All, my sister in law is looking for a Rheumy. We think she has PMR. She has ...

Marilyn1959

•7 years ago

7 Replies

Not sure whether to go ahead with 2nd Total Knee Replacement in October

Had PMR for over 7 years and been on pred all that time. Increased for flares then decrease. Longest time on small maintenance dose was over 2 years then...

Had PMR for over 7 years and been on pred all that time. Increased for flares t...

AussiePolyDee

•7 years ago

14 Replies

Cold, dead feet and ankles

As I am new to this site I am working through my symptoms to shed light on their relevance to thIs condition . I have been so pleased with so much help so far...

As I am new to this site I am working through my symptoms to shed light on their...

Sorop

•7 years ago

8 Replies

Rumi says no PMRA

As when I see him I have no bad symptoms. I told him how I feel at 5 in the morning. At my worst. But he examined me. No blood tests no scan. Nowt els. I...

As when I see him I have no bad symptoms. I told him how I feel at 5 in the mor...

Rocketronzy

•7 years ago

9 Replies

Rheumatologists in Dorset or surrounding area

Hi i was wondering if anyone knew of any good rheumatologists in Dorset private and NHS.. dont mind travelling either, so it doesnt have to be confined to...

Hi i was wondering if anyone knew of any good rheumatologists in Dorset privat...

Maggielou

•7 years ago

3 Replies

To increase meds or not to increase meds that is the question.....

I just need a little guidance. Have had PMR for now a year, am on 8 mgs prednisone, don't seem to be able to go below that but that is ok. Was doing well and...

I just need a little guidance. Have had PMR for now a year, am on 8 mgs predniso...

England05

•7 years ago

12 Replies

Taking care of the "inner animal"

I have had PMR for about 18 months and read all the posts almost daily. It seems to me that most fall into one of two categories-dosing/reducing or how to...

I have had PMR for about 18 months and read all the posts almost daily. It seem...

bunnymom

•7 years ago

9 Replies

pmrgca

Hi I am new to this site . I suffer with pmrgca I have been taking steroids for the past 12 months now . I have reduced my steroids but cant seem to get below...

Hi I am new to this site . I suffer with pmrgca I have been taking steroids for ...

KathleenJohnson107

•7 years ago

9 Replies

Toe nail

Hi all, only a quicky, has anyone had a toenail off ??? I am up foot clinic this Friday again , they grow so fast ! And the nail next to your big toe has...

Hi all, only a quicky, has anyone had a toenail off ??? I am up foot clinic this...

Margaret1951

•7 years ago

16 Replies

Part II of the post "RESEARCH PROJECT: 'Your Ears' - WE NEED YOUR HELP." from last year

I'm reposting this so as to be able to keep it up-to-date for the new people who may not have seen it - it's been up once but I can't find it to point it out...

I'm reposting this so as to be able to keep it up-to-date for the new people who...

PMRpro

Ambassador•7 years ago

4 Replies

GCA Blues - summer refrain...

Like many others I don't post regularly but always enjoy reading the thoughtful and helpful contributions of others. How DO you aunties and Mark find the time...

Like many others I don't post regularly but always enjoy reading the thoughtful ...

LizzieGuinn

•7 years ago

30 Replies

Diastasis Recti.....

.......this is what my GP has diagnosed re my abdomen....it's usually associated with a post partum state but can happen apparently anytime the abdomen gains...

.......this is what my GP has diagnosed re my abdomen....it's usually associated...

Doralouise77

•7 years ago

6 Replies

GCA Flare

Hi, not posted for awhile as been ok. Started on 40 mg 17 months ago with GCA. Had a couple of hiccups but as told by my rheumatologist in March keep reducing...

Hi, not posted for awhile as been ok. Started on 40 mg 17 months ago with GCA. H...

Susanmod

•7 years ago

2 Replies

A Question (for the Administrators?): what might a 'Hidden' profile mean here..?

Greetings All Just a quick query / concern (?): I notice that one of this forum's long standing, regular, open and very pleasant contributors has recently...

Greetings All Just a quick query / concern (?): I notice that one of this forum...

markbenjamin57

•7 years ago

3 Replies

Thanks from FrankP

Thanks for all your replies. Very encouraging. I will develop a strong 'pacing' regime , whilst waiting for a cure ! ! ! Lol - FrankP of Norwich , Norfolk, UK

Thanks for all your replies. Very encouraging. I will develop a strong 'pacing' ...

FrankP

•7 years ago

2 Replies

Apple Cider Vinegar and Aloe Vera juice

I am sure this has come up before but I was wondering about trying Apple Cider Vinegar and/or Aloe Vera juice. I have read that they can help you taper...

I am sure this has come up before but I was wondering about trying Apple Cider V...

SusyTe

•7 years ago

55 Replies

Biopsy

When diagnosed with GCA I had several of the symptoms. Put on 60mgs of pred and all cleared. Since dropping pred dose I keep getting a pain in the eye, at a...

When diagnosed with GCA I had several of the symptoms. Put on 60mgs of pred and ...

simoncla

•7 years ago

12 Replies

Reduction and flare

Hi, I have reduced from 15mg to 2 1/2 over the last 2 years. My last crp was 8 but thyroid looks like it's misbehaving now. Another check in September. Over...

Hi, I have reduced from 15mg to 2 1/2 over the last 2 years. My last crp was 8 b...

Jennykk

•7 years ago

7 Replies

PMR & Fatigue.

Hello All, I am 7 months into my PMR and down to 9 mg Prednisolone. The pain is largely controlled but debilitating fatigue is a problem. My question is: Is...

Hello All, I am 7 months into my PMR and down to 9 mg Prednisolone. The pain is...

FrankP

•7 years ago

2 Replies

PMR - cramps and soap

I was diagnosed with PMR around Feb. 2017. Over that time my hand cramps, especially in the left hand, have got progressively worse, so I did a google search...

I was diagnosed with PMR around Feb. 2017. Over that time my hand cramps, especi...

hiandri

•7 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Fatigue

Tapperin Down of Prednisolone.

Well something has to change...month 4 update.

Product recommendations for a little happiness boost?

Grasping at straws

GCA and thyroid

Feeling a little more positive!!

Dexascan

Well worth a Dexa Scan to see if Bisphosphontes are essential!

Parker and the Bat Moth

Do you know a good Rheumy in Chessington Area?

Not sure whether to go ahead with 2nd Total Knee Replacement in October

Cold, dead feet and ankles

Rumi says no PMRA

Rheumatologists in Dorset or surrounding area

To increase meds or not to increase meds that is the question.....

Taking care of the "inner animal"

pmrgca

Toe nail

Part II of the post "RESEARCH PROJECT: 'Your Ears' - WE NEED YOUR HELP." from last year

GCA Blues - summer refrain...

Diastasis Recti.....

GCA Flare

A Question (for the Administrators?): what might a 'Hidden' profile mean here..?

Thanks from FrankP

Apple Cider Vinegar and Aloe Vera juice

Biopsy

Reduction and flare

PMR & Fatigue.

PMR - cramps and soap

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive