CBD OIL

[jevuki]

Good Morning all, I am in the dead slow reduction of prednisone having been on 20 mg for 2 years now down to 13 mg. I am experimenting with gabapentin and CBD oil as a secondary relief to inflammation I am also taking liquid turmeric in capsule form. So far not to bad but still a little sore in the legs and arms. Discussed with doctor and he agrees if I can get anything to work and get off prednisone it will be a good thing. He just read an article about the CBD oil and is very interested to see if it will work for me. Just sharing to see if anyone else has tried this. I have had a terrible time with the prednisone and now may need a hip replacement it is eating my bones.

[HeronNS]

have been interested in this for a long time, but haven't tried it myself. Yes, please let us know if you think CBD oil helps. Btw, how did you make the bolded letter?

[jevuki in reply to HeronNS]

I don't know how it bolded that was an accident (sorry) so far it appears to take a little edge off the joint soreness, I spoke with the doctor and he is now watching this closely as it may help other patients. I am never not searching for a way to get of prednisone and I don't want to be crippled either. There is a lot of research that was done in Israel and papers have been published about the separation of the chemicals and the healing properties that it has. I'm sure you can find on the internet. It is not very expensive and you only take two squirts at a time so it is very small increments. I will keep you posted

[HeronNS in reply to jevuki]

Cannabidiol is used to treat things like intransigent epilepsy in children. It seems like something which should be in any doctor's medicine box, not treated with suspicion as merely an "alternative". I know that regular hempseed oil has helped my skin, so I've no doubt the more active compounds in the leaves are effective.

[Slosh in reply to HeronNS]

Cannabis used to be a part of mainstream medicine in the 1930's. Big Oharms couldn't make money from it and because it was so effective it had to be demonised and shut down.

[HeronNS in reply to Slosh]

Slosh, I believe you. There's an ongoing movement in Canada, so far unsuccessful, to make herbal remedies nearly impossible to obtain. If that were to happen i think there would be people growing their own and doing their best with non-standardized dosing.

[Slosh in reply to HeronNS]

Yes - they will control it through the FAO/WHO's Codex Alimentarius - they will say it needs to be controlled as herbs can be dangerous.

[HeronNS in reply to Slosh]

1984 wasn't supposed to be a guidebook.

[Slosh in reply to HeronNS]

😂😂😂

[Gaz227 in reply to jevuki]

Hi , I have just purchased some Cannabidiol , then I read an article that it does not combine well with prednisalone , can even have very bad side effects have you or anyone else trying it (that’s listening in ) got any advise I am currently in 4mg of pred . I heard so many good things about CBD now I am confused and concerned as to

whether or not to try it

[PMRpro Ambassador in reply to Gaz227]

Please could you post this question as a new post? Few people will see it here because of the way this forum works - only those who actively followed it originally will be notified.

Judging by this

naturalwellnesscbdoil.com/u...

it should be OK - but the warning concerns medications which are metabolised in the liver and prednisone is one. Prednisolone (as used in the UK) is not. What appears to happen is that CBD oil MIGHT (not specifically mentioned) slow down the metabolism of prednisone in the liver and that might make the effect stronger. Which would be a steroid sparing effect - you would get more effect for the same dose. However - that also applies to side effects and if you had any they too might be made more pronounced.

[PMRpro Ambassador in reply to HeronNS]

If you block the text you want bold and do Control B it goes bold, do it again and it reverts to normal - just like in Word.

[Doralouise77 in reply to HeronNS]

I've tried CBD oil but didn't find any noticeable effect

[Estellemac in reply to Doralouise77]

Same here 😊

[tgca in reply to HeronNS]

My brother has taken CBD oil for the past few months for pains in his legs and he is now pain free (no other meds) and delighted... is buying some more.

[Slosh]

I have started taking high dose Vitamin. Just in the last few days and feel like it's helping - I've managed to get down to 10 (for two days) with no major adverse symptoms - we will see.

[S4ndy]

I am taking cbd oil. Decided to give it a try when my gp surgery had to bow to the powers that be and stop prescribing me coproxamol on the NHS. I have tried various painkillers but nothing worked, seems I am codeine resistant. I have been looking into cbd on and off over the years and have read a lot if research and articles.

Anyway a couple of weeks ago I had a chat with my gp and decided to try cbd. Initially this was to help with my osteoarthritis which I have in knees, shoulders and lumber spine. Not for PMR .

Its early days as I have only been taking it for two weeks. In that time, apart from one day I have taken no painkillers for my arthritis pain and my stiffness has reduced. More interestingly I have noticed two benefits I did not anticipate, firstly the deathly fatigue seems to be much less now and secondly my digestion seems to have settled down (I have IBS). These are definite bonuses for me. However I am aware that it's early days yet but feel its worth continuing.

I am currently on 25mg of Pred following a flare up but my last bloods show the inflammation levels are falling. Waiting to get results of next test to see if I can start to slowly reduce again. This is why I am reserving judgement on cbd as my steroid dose is still high.

My advice is to do your research, find out as much as you can. Find reputable products from companies that lab test their products and abide by MHRA rules. Its perfectly legal too and there is no "high".

Unfortunately the big pharma version in UK is only available privately unless you live in Wales where it is available for MS on the NHS. It is very expensive so I could afford to fund this even if it was prescribed off license.

I would much rather take cbd than opiates to help with my arthritis pain.

[Bimbos in reply to S4ndy]

Hi I know this post was a while ago. I live in the uk. I have been trying to tapper prednisolone slowly. As soon as I get down to 10 mg I aches everywhere. So go back up to 11. I was originally on 25mg 18 months ago. I seem to have gone into a flare up. My hips my back neck legs knees. I have read about CBD and we can purchase the oil now from Holland and Barrett. Just wondered if I take this with Prednisolone. Just wondered if you had any more information. Thank you

[S4ndy in reply to Bimbos]

Hi Bimbos, CBD oil or pastes can be taken as well as steroids. You should leave a two hour gap between taking medication and CBD. I understand that this is because the same enzymes in the liver break down CBD as prescription meds. Therefore by leaving a gap it does not "stress" your liver.

The only other warnings I have seen are regarding blood thinning drugs as CBD can thin the blood too so in this scenario it would be best to consult your doctors.

Same applies to people who are due surgery. It is recommended to stop CBD before the op then restart it after you have healed.

The oil sold in Holland and Barrett is not strong and quite expensive but a few people have started out with that to see how they get on. It can take a few weeks to get your CBD receptors to switch on but I noticed a difference within 24 hours.

I have been taking CBD for a year now and only had to resort to opiates once (kidney stone). I was taking up to 8 opiate painkillers a day for osteoarthritis. I now only usually need paracetamol and in a year have managed to get from 30mg prednisolone to 13mg without a flare. I think the CBD is helping the arthritis pain so it doesn't get mistaken for PMR pain. It certainly helps with the fatigue and IBS too.

My advice is speak to your gp and if there isn't a reason you shouldn't try it then give it a go and see.

Hopefully we may be on the cusp of seeing medicinal use of cannabis being debated in government and hopefully approved. CBD oil has no THC and therefore is perfectly legal in the uk. Its not the same as cannabis oil which does have THC (the stuff Billy Caldwell the child in the news is using to control his fits).

Hope this helps x

[Jemsea in reply to S4ndy]

I have just received my samples of CBD oil from CBD Brothers. Would you mind telling me which oil from CBD Brothers you are using I am a litte afraid to start, because I know how sensitive my system is. The pred affects my eyes and my head and makes me feel off balance. I'm worried in case the oil may do the same.

[Jemsea in reply to Bimbos]

Hi Bimbos

I am currently on 5mg of prednisolone for PMR. Unfortunately I get side effects even from this very low dose, as I do with antibiotics. I am about to try CBD oil for pain and anxiety. A herbalist recommended I get samples to begin with - from CBD Brothers -

to determine which would be best for me. There are three types - Sativa, Hybrid and Indica. I have just sent off for the Hybrid and the Indica - recommended I start with just one drop of Hybrid then increase to two, considering how sensitive my system is.

CBD Brothers are highly recommended. Will post how I get on when these arrive. Forget the Holland&Barrett ones and try the samples first.

[Viv54 in reply to S4ndy]

Hi , i just been thinking about trying cbd oil, i wonder if you could point me in the right direction, as im a bit lost as to which are the ones that are worth a go, would be so grateful. Thank you x

[S4ndy in reply to Viv54]

Hi Viv, I no longer use CBD. I didn't find it helped PMR pain although it had some effect on my IBS and helped with relaxation. I used a company called CBD Brothers who were based in Mildenhall, Suffolk. I don't know if they are still going but it was their purple CBD paste that I used.

[Viv54 in reply to S4ndy]

Hi, thanks for your reply, yes they are still going and highly recommend, I'm giving their oil a go.! Thanks for your help🌸

[jevuki]

Hi Sandy, The store I am going to is wonderful full of many natural and non toxic vitamins etc. The owner is very very informative and has much printed material as well as words of wisdom. The website is

Autumn Harvest Natural Market

@AutumnHarvestNaturalMarket

He has posted many articles that folks may find interesting

[Xanthe12345]

What is Cbd oil please?

[jevuki in reply to Xanthe12345]

cannabidol oil derived from hemp

[Estellemac]

I am having a hip replacement soon. I don't know sometimes if the pain is Arthritis or PMR. It's not just my hip. The pressure on the rest of my body from using crutches is wearing other bits out. I was on 6 mg Pred reducing by 1mg monthly. Anyway I tried CBD Oil. It's quite expensive if you get the higher ratio. I started at 35%. I did a fair bit of research into what you get for your money to get the best outcome. Charlottes Web has good reviews for their product. I bought from CBDbrothers on recommendation from friend. They also had great feedback. I used it for two months and didn't notice any improvement. It didn't work for me and would be quite costly long term but we are all different and you don't know till you try it. Good luck.

[S4ndy in reply to Estellemac]

CBD Brothers is who I use too.

[Estellemac in reply to S4ndy]

How long have you used it for I gave up after a month. My sister didn't notice a difference either. I am on loads of meds till after my op so I might try again once I have stabilised pain from OA.

[S4ndy in reply to Estellemac]

This is my third week. I am pleased with the results. I am taking 2 drops 3 times a day using two different oils from CBD Brothers. I started with 1 drop 3 times a day as the advice is to start slowly and increase gradually. It can take time and a bit of experimentation with dose etc apparently and not all products are equal. For example the product sold in Holland & Barrett is a very low cbd content.

I have also purchase a vape pen to use for any breakthrough pain. A few puffs help ease again.

I am not pain free but its certainly managed better and I haven't had to take coproxamol at all and have only taken 2 paracetamol.

Before the PMR I was in a huge amount of medication for the osteo problems inc Diclofenac, Gabapentin and coproxamol.

I am still on steroids, amitriptyline, sertraline and pantoprazole and calceous chewy tabs so still in lots of meds. I have researched the interactions of cbd with the meds and as long as you take a two hour gap between meds and CBD you should be ok for ingesting the oil.

This is where the vape pen comes in handy as its a different way of taking it and you don't need to worry about the 2 hour gap.

Hope your operation goes ok and you make a good recovery xxx

[Estellemac in reply to S4ndy]

I might have another go after the op and when I am off the Morphine. I like the vape pen idea. If it stops me taking cocodamol that's a bonus. I also take Naproxen and I want to stop that too but I think my other hip and right shoulder are going now. I put that down to walking and sleeping on one side. All the positive feedback must count for something. I am pleased you are feeling the benefit.

[piglette in reply to Estellemac]

My gosh, are you saying that you are taking morphine, cocodamol and Naproxen? Not to mention pred. Do they help? When is your op?

[MrsNails in reply to piglette]

piglette this post is four years old……

[piglette in reply to MrsNails]

Thanks, time flies when you are having fun! I wonder why it came up on my emails today.

[MrsNails in reply to piglette]

I was about to reply when l spotted the date! You can take Morphine with Paracetamol (on its own) but NOT Codeine combined with Morphine 🤦🏻Someone must have ‘Liked’ the Post & it’s brought it up to the Top…..

I wish the Age of a Post was clearer…

Cheers

Angela

[PMRpro Ambassador in reply to piglette]

Because someone found it and asked a question - so some of us got notifications. Just scroll up a bit and you will see Viv's question to S4ndy

[jevuki]

I am also going to have a hip replacement I have pains in the groin, legs especially the knees, I too am confused on where the pain comes from the PMR or the hip? I do know that my arms are heavy and difficult to lift some days that I am convinced is the PMR. It takes the edge off my knees a bit so but I only have 1 mg oil waiting for a higher dose to be available

[jevuki]

I picked up my oil yesterday I got 15mg of oil in capsule form instead of the dropper. I will start on the weekend to see how I do (I did not want to risk at work) Fingers crossed that this will allow me to reduce down farther and get off prednisone. I will keep you all posted I imagine it will take a few days to settle into the system.

[Hidden]

Been using Gabapentin as well, couple of years ago. Nasty stuff, that gets deep into the brain, messing with all kinds of stuff, including your dreamscape. Mine turned all dark and gloomy, and then disappeared all together. Seemed pretty addictive as well. I would surely walk away from that one, and focus on the CBD and the turmeric.

[jevuki in reply to Hidden]

The turmeric and the CBD oil did not help. The gabapentin does I only take a night so I am not so stiff in the morning

[Hidden in reply to jevuki]

That seems very doable, for your dosage seems tenable. My pain doctor had very different dosage ideas. Explains a lot.

[Hidden]

I am learning that lots of CBD users are taking affordable, small doses. Seems that they are more effective in higher dosage. Then there's full spectrum (+THC) There too one finds different theories. It's not an easy one to crack. My mom just ordered CBD, 2 bottles, for her PMR. She told me the effect on headache was OK, but no more then that. The I saw the label, and these were gelules with merely 2.8% CBD. Cheap, but way too light according to a lot of articles and opinions from users and professionals. I am starting with 25% CBD, hoping for better results. They'll be in the mail soon, so I can start separating fact from fiction, hopefully.

[jevuki in reply to Hidden]

no and if you take blood pressure meds it gets complicated. I gave up after two attempts (bottles) when it did not provide the relief

[Christine2307]

I found this quite interesting it’s playing now and quite topical two.thesacredplant.com/docu...