I have just completed my few month stint as a volunteer for research into the fatigue associated with our conditions. It involved travelling to Wharfdale Hospital every few weeks. Wearing a step counter, keeping simple diaries of activity, sleep etc. having various health checks, bloods monitored, symptoms followed up. Responding to telephone interview in between visits. Good training for the pro- active patient and a very worthwhile aim. They have funding to extend it for a few more months. If you are interested phone Sally Smith ( Dr Mackie's secretary) at Wharfdale Hospital on
TEL. 0113 392 1673
Must be able to get to Leeds or Otley. ( and be tired).