Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for August 2017

Hello I'm new here

Hi to all! I was diagnosed with PMR last October 2016, after an extremely stressful year I developed muscular pain in my legs and shoulders. I was quickly...

Hi to all! I was diagnosed with PMR last October 2016, after an extremely stres...

Gillgetmeoffthemeds

•7 years ago

42 Replies

Tapering prednisone and PMR

it seems that tapering prednisone is a topic that could use its own thread. Let's give it a try, ...with experience leading the way, so "newbies" can locate...

it seems that tapering prednisone is a topic that could use its own thread. Let'...

1Purplecrow

•7 years ago

34 Replies

remission gca?

Until I was diagnosed, by letter, and still no Endocrine appt, I was on 2mg Pred, and doing well. Along came the Synacthen test, and diagnosis of Addison's...

Until I was diagnosed, by letter, and still no Endocrine appt, I was on 2mg Pred...

karools16

•7 years ago

22 Replies

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Well that's annoying.

I've been getting and keeping intense headaches over the last 6 days. I went to Dr's last night and my blood pressure was 170 Systolic! They don't seem to...

I've been getting and keeping intense headaches over the last 6 days. I went to...

IdasMum

•7 years ago

14 Replies

SDORFD again!

I'm well aware that this post is going to seem more than a tad stupid to some, but I mentioned it briefly in a reply last week, it works for me and I wondered...

I'm well aware that this post is going to seem more than a tad stupid to some, b...

Mai45

•7 years ago

23 Replies

new symptoms-jaw pain and stiff neck

Morning, I've been on 20 mg prednisone for 2 weeks and started 17.5 today - working towards 15 mg. Past couple weeks I have noticed bilateral jaw discomfort...

Morning, I've been on 20 mg prednisone for 2 weeks and started 17.5 today - work...

barbthy

•7 years ago

9 Replies

To Taper or Not?

I have been on 25 mg Pred for 3 1/2 weeks splitting the dose 15mg at 5:00 am and 10 mg at 3:30 pm. I still have some shoulder and/bilateral arm pain about an...

I have been on 25 mg Pred for 3 1/2 weeks splitting the dose 15mg at 5:00 am and...

Sandy1947

•7 years ago

52 Replies

Bones and prescriptions

Received great advice when I was first diagnosed in October 2015 and wonder if you can help me. I am currently on 3mg - tried 2.5 a few weeks ago and pain came...

Received great advice when I was first diagnosed in October 2015 and wonder if y...

Adnam57

•7 years ago

16 Replies

Urine infection!!!

Hi, so I have been on antibiotics for 5 months. Several types, several strength and now on a retainer!! I have had a urine infection for the duration of this...

Hi, so I have been on antibiotics for 5 months. Several types, several strength ...

Jem99

•7 years ago

14 Replies

Update

Following my post regarding a better time to take enteric coated Pred, as promised here's an update over the last couple of days. I've now taken two doses of...

Following my post regarding a better time to take enteric coated Pred, as promis...

Janann25

•7 years ago

19 Replies

GCA flare

Hi Update on last week, tried 10 for a week - no change. I've spoken to GP, she wants me to do 30 for a week and see how I go then she'll speak to me next...

Hi Update on last week, tried 10 for a week - no change. I've spoken to GP, she ...

Susanmod

•7 years ago

5 Replies

YET ANOTHER Problem. FINGERS LOCKING.

Just for a few seconds. Getting worse 😒

Rocketronzy

•7 years ago

2 Replies

Norwich informal support group.

This is the 2nd post as I found it difficult to locate the post I sent yesterday. It may be me or pc having a blip ! Meeting at Notcutts Garden Nursery,...

This is the 2nd post as I found it difficult to locate the post I sent yesterday...

Maryjayne

•7 years ago

2 Replies

PMR

Hi just want to know if anyone knows if your diet when having PMR can make a difference . I have heard about an anti inflammatory diet and just curious to know...

Hi just want to know if anyone knows if your diet when having PMR can make a dif...

KathleenJohnson107

•7 years ago

20 Replies

Travel insurance

I have recently been diagnosed with GCA, and i am booked for a cruise in Feb, but cannot get travel insurance, I am going onto the clinical trial and as soon...

I have recently been diagnosed with GCA, and i am booked for a cruise in Feb, bu...

Chross

•7 years ago

9 Replies

NOT AN HAPPY BUNNY 😕 What wrong with me.

Doctor wants me down from 15mg pred in 6 weeks. 😱 15 10 for two weeks. Then 10 5. Followed by 5 0 he says should be easy as I have am supposed not to have...

Doctor wants me down from 15mg pred in 6 weeks. 😱 15 10 for two weeks. Then 10...

Rocketronzy

•7 years ago

37 Replies

Free NHS eye test for GCA patients?

Hello, please can anyone advise me whether a diagnosis of GCA entitles us to a free NHS eye-test? I normally have to pay. Thank you AliDeJ

Hello, please can anyone advise me whether a diagnosis of GCA entitles us to a f...

AliDeJ

•7 years ago

13 Replies

Watering eyes

Hi 7 months into Pmr and down to 14 mg of pred , I'm getting very watering eyes. Anyone else got this?

Hi 7 months into Pmr and down to 14 mg of pred , I'm getting very watering eyes....

Lynnray

•7 years ago

8 Replies

Encouragement

The lightbulb went off today when I was reading the daily digest. Decided to make a folder in my email to keep these so on days I am not doing so good, I can...

The lightbulb went off today when I was reading the daily digest. Decided to mak...

newby1

•7 years ago

14 Replies

Painful fingers latest update

Following my posts a month or so ago querying the cause of painful fingers at the same time as a flare, with all the subsequent great replies, thought I'd let...

Following my posts a month or so ago querying the cause of painful fingers at th...

Lin-lou

•7 years ago

4 Replies

GCA and Tocilizumab

I have just heard that I have funding and approval from the NHS to take Tocilizumab and will be having my first infusion this week or the week after. Then I...

I have just heard that I have funding and approval from the NHS to take Tocilizu...

christine2715

•7 years ago

10 Replies

reduced to 10 mg june8, now rheumy says stay for another 3 months

well if you have followed my story, i started on 40 mg of pred llast oct, diagnosed by my gp, got relief from not being able to lift my arms to brush teeth,...

well if you have followed my story, i started on 40 mg of pred llast oct, diagno...

arvine

•7 years ago

5 Replies

Feeling horrible

I've just reduced, very,very slowly to 8.5mg pred and am reminded how awful PMR is. I'm stiff, lethargic and feel slightly feverish. I assume this is steroid...

I've just reduced, very,very slowly to 8.5mg pred and am reminded how awful PMR ...

maria40

•7 years ago

8 Replies

Grandson has just developed the Chicken Pox rash, plagues of Job. 😖

My two year old grandson has just developed the rash of Chicken Pox. I look after him on a regular basis. I have not had Chicken Pox even though I nursed my 3...

My two year old grandson has just developed the rash of Chicken Pox. I look afte...

SheffieldJane

•7 years ago

37 Replies

Norwich informal support group.

Just a reminder that the group will be meeting August 21st 10.30am at Notcutts Garden Nursery NR4 6QP. As you enter the Cafe walk straight forward towards the...

Just a reminder that the group will be meeting August 21st 10.30am at Notcutts G...

Maryjayne

•7 years ago

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FORGOT TO TAKE PRED. 😱

Wow think I got a taste about coming off pred too quick. This morning Fogot to tack my pred 15 mg. By 10. Realise 😱Got bus back home not too good rest of...

Wow think I got a taste about coming off pred too quick. This morning Fogot to ...

Rocketronzy

•7 years ago

23 Replies

Where from here PRO

As You always said the more you relapse the harder to get back. So my NYC rheumy reduced so quickly that I relapsed and became very, very ill. He ignored the...

As You always said the more you relapse the harder to get back. So my NYC rheumy...

Nap1

•7 years ago

11 Replies

Finger joints

Sorry, I seem to be posting a lot lately. Yesterday I noticed second joint of little finger very painful as though I'd injured it but not aware of having done...

Sorry, I seem to be posting a lot lately. Yesterday I noticed second joint of l...

HeronNS

•7 years ago

25 Replies

Best time to take medication

I've been reading recent posts about the best time to take medication and I found it really interesting because I've been wondering whether to change my own...

I've been reading recent posts about the best time to take medication and I foun...

Janann25

•7 years ago

12 Replies

Frozen shoulder or pmr

I have had neck,Shoulder and arm pain since Christmas.had mri and saw rheumatologist last week. She diagnosed frozen shoulder. I was hoping she was right but...

I have had neck,Shoulder and arm pain since Christmas.had mri and saw rheumatolo...

fibrosandie

•7 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Hello I'm new here

Tapering prednisone and PMR

remission gca?

Well that's annoying.

SDORFD again!

new symptoms-jaw pain and stiff neck

To Taper or Not?

Bones and prescriptions

Urine infection!!!

Update

GCA flare

YET ANOTHER Problem. FINGERS LOCKING.

Norwich informal support group.

PMR

Travel insurance

NOT AN HAPPY BUNNY 😕 What wrong with me.

Free NHS eye test for GCA patients?

Watering eyes

Encouragement

Painful fingers latest update

GCA and Tocilizumab

reduced to 10 mg june8, now rheumy says stay for another 3 months

Feeling horrible

Grandson has just developed the Chicken Pox rash, plagues of Job. 😖

Norwich informal support group.

FORGOT TO TAKE PRED. 😱

Where from here PRO

Finger joints

Best time to take medication

Frozen shoulder or pmr

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