I grumbled a couple of months ago about my doctor who told me to finish up my pred pills then stop and see what happened. I did in fact have enough pills to almost exactly be able to taper using four day start of DSNS. So I thought i'd try. After all, maybe I am in remission and only feeling withdrawal symptoms when I taper? Well, that attempt didn't go well. Got halfway through before giving up. Back to 2 mg for a couple of days, then a return to 1.5. After a little while I tried again, using 6 day start. Same problem, only faster this time. I've been back at 1.5 for a couple of weeks now and feeling better. But, of course, the pills were running out so I needed a prescription renewal.
But my doctor is away for the month and there is a locum. I saw this lovely person today. She asked me questions, gave me a prescription and a refill for enough pills to last for maybe a year if I need them, and suggested that I have the CRP checked instead of ESR (they won't do both here at the same time if it's just followup). She then suggested that I go back and see her before her term is up (end of August) and she will discuss the CRP with me. It was in fact done last time, again by a substitute doctor, and somewhat elevated, but as it was so much lower than at initial diagnosis my GP seemed to think nothing of it. This locum has multiple sclerosis so, as I remarked to her, has a very good understanding of auto immune diseases. She agreed, although wished it wasn't because of her MS! I came away feeling how very nice it was to spend time with someone who seemed interested, took time to look through back test results and see the changes, and ask me questions.