Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,314 members • 38,051 posts

All posts for July 2017

Folliculitis

Hi there. Seven months after PMR diagnosis and down to 8.5mg of Pred. Up to now I have not experienced any downsides since the medication sorted out the...

Hi there. Seven months after PMR diagnosis and down to 8.5mg of Pred. Up to...

DMBpmr

•7 years ago

4 Replies

More information on MTX

The attached website Johns Hopkins Hospital some how sent me an email that covers Vasculitis which covers GCA it's just a bit more information. Not trying to...

The attached website Johns Hopkins Hospital some how sent me an email that cover...

englishrose417

•7 years ago

5 Replies

Pain

I hope I am not writing too often but am trying to find a good place and how to manage prednisone and pain. On 15 mg for 3 weeks in split dose (10 at 0700 and...

I hope I am not writing too often but am trying to find a good place and how to ...

barbthy

•7 years ago

18 Replies

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Should I increase pred dose if crp doesn't normalise?

Been on pred for a fortnight now. My crp was 28 before I started pred (although it has been over 50 in the past). Rheumatologist put me on 15 mg but I still...

Been on pred for a fortnight now. My crp was 28 before I started pred (although ...

Jontie

•7 years ago

24 Replies

Per enquiry

Can you recommend a rheumatologist who is not frightened of giving steroids in the uk?

Can you recommend a rheumatologist who is not frightened of giving steroids in t...

Barwind

•7 years ago

14 Replies

The Lighter Side of PMR: Janet and John and The New Rheumatologist - Part Two. A Twist in The Tale? ;-)

Greetings to You Lot, wherever you are. Well, all I can say is: you asked for more of this stuff - don't you ever learn?! ;-) Here goes: It’s nearly six...

Greetings to You Lot, wherever you are. Well, all I can say is: you asked for ...

markbenjamin57

•7 years ago

27 Replies

I can never thank this group enough - THANK YOU

I can never thank this group especially 'PMR Pro' for helping get my father diagnosed - you will see my battle from previous posts regarding my very poorly...

I can never thank this group especially 'PMR Pro' for helping get my father diag...

riannabri

•7 years ago

7 Replies

Update after Ireland trip

Hi everyone, Just to let you know about my trip to the wedding in Eire (Bunratty) last weekend. First of all we made the mistake of travelling by car and ferry...

Hi everyone, Just to let you know about my trip to the wedding in Eire (Bunratty...

PatB1948

•7 years ago

15 Replies

High Markers ESR 67 CRP 99

Third blood test was slightly better than these numbers. 5 weeks in with PMR diagnosis, too much time on my hands and realizing there's no quick fix makes me...

Third blood test was slightly better than these numbers. 5 weeks in with PMR dia...

Sandy1947

•7 years ago

33 Replies

Help needed!

Hi everyone. Mad week...having a rush colonoscopy tomorrow after only seeing my GP a week ago and a consultant two days ago. But I'm GCA and currently on 9mg...

Hi everyone. Mad week...having a rush colonoscopy tomorrow after only seeing my ...

Judy211

•7 years ago

11 Replies

Is it temporal arteritis?

Last month my sed rate was at 34 and my C-reactive protein was at 2. My rheumatologist raised my prednisone from 4mg to 5mg and said I will see you in 6...

Last month my sed rate was at 34 and my C-reactive protein was at 2. My rheumat...

bonnielm1

•7 years ago

9 Replies

Good news today

I was diagnosed with PMR in Dec of 2016. I started on 20 mgs of prednisone and have been tritating down monthly. I had some other health problems too at the...

I was diagnosed with PMR in Dec of 2016. I started on 20 mgs of prednisone and h...

nymima01

•7 years ago

13 Replies

Have I had PMR for years or just a month?

Over the past couple of days I have been wondering............. Whether I have actually had PMR for years rather than just the past month????? Eight years ago...

Over the past couple of days I have been wondering............. Whether I have a...

Marilyn1959

•7 years ago

30 Replies

Newbie. Positive GCA. Biopsy.

Hi All. I'm a male aged 69. Had a positive biopsy result on 30th May at Q.E. Hospital Birmingham. Very good in their treatment diagnosis & follow up....

Hi All. I'm a male aged 69. Had a positive biopsy result on 30th May at Q.E. H...

Hidden

•7 years ago

19 Replies

First Flare Warning - PMR Hug

Hi, I have recently reached 7 mgs of Pred. Using DSNS. I have my husband's brother's big posh (3rd) wedding on Saturday and then again more celebrations for...

Hi, I have recently reached 7 mgs of Pred. Using DSNS. I have my husband's brot...

SheffieldJane

•7 years ago

100 Replies

Reminder - Final Evaluation of the Steroid Taper Web Application

Could I just remind everyone that the deadline for providing feedback following an evaluation of the steroid taper web application is this Friday, 28th July. I...

Could I just remind everyone that the deadline for providing feedback following ...

Sandra_123

•7 years ago

4 Replies

Could this be more than an infected tooth?

I was diagnosed with PMR on 8 May this year and was treated with 15mg Pred - magic!! Then towards the end of June, I developed quite bad headaches together...

I was diagnosed with PMR on 8 May this year and was treated with 15mg Pred - mag...

Janann25

•7 years ago

8 Replies

Lungs

Anyone have trouble breathing? Had a cold in April went to Er (was at 12 1/2 mg of pred) because of breathing was put on 50 mg for four days then cut by 5 mg...

Anyone have trouble breathing? Had a cold in April went to Er (was at 12 1/2 mg ...

Josholyn

•7 years ago

11 Replies

Pred or PMR symptoms when tapering 15mgs to 10mgs?(alternate day doses)

Hi yet again! Have started initial tapering 15mgs / 10mgs on alternate days as suggested by Rheumy. 15mgs was initial dose and kept everything at bay with...

Hi yet again! Have started initial tapering 15mgs / 10mgs on alternate days as ...

Marilyn1959

•7 years ago

13 Replies

PMR Newbee

Hello all, As ye can see I am a Newbee to PMR. Actually I don't know for sure if it's PMR or Fibromyalgia! I am on 25mg Pred going down to 20mg Wednesday....

Hello all, As ye can see I am a Newbee to PMR. Actually I don't know for sure ...

Christinemac

•7 years ago

11 Replies

vaginosis

does anyone no anything about vaginosis

kingharold11

•7 years ago

12 Replies

Shall I laugh or cry !

Well folks cancelled my early morning appointment and rebooked for 3 today. So I thought Got there, went to book in , receptionist could not find me on......

Well folks cancelled my early morning appointment and rebooked for 3 today. So I...

Margaret1951

•7 years ago

25 Replies

Tapering...thankful for a good GP

Hi everyone. Just a little follow up to a post I put on earlier (a reply to cctraveller)...had to see my GP today about something else..(back trouble...

Hi everyone. Just a little follow up to a post I put on earlier (a reply to cctr...

altywhite

•7 years ago

8 Replies

That was the year that was

It is now twelve months since a chance watching of a Doc Martin repeat on the television where he diagnosed his aunt as having GCA lead me to investigating GCA...

It is now twelve months since a chance watching of a Doc Martin repeat on the te...

Retailmonkey

•7 years ago

12 Replies

What else could it be

I am back again, still on 2.5 mg predict but have to increase it to 5 again . I get that it's inevitable to go 2 steps forward and one back and although...

I am back again, still on 2.5 mg predict but have to increase it to 5 again . I ...

Hidden

•7 years ago

16 Replies

Scare this weekend

I am newly diagnosed with PMR (end of June) woke up Saturday in the middle of the night and my left eye was watering and burning. Watering gone in morning and...

I am newly diagnosed with PMR (end of June) woke up Saturday in the middle of th...

barbthy

•7 years ago

10 Replies

RESEARCH PART II

Research Part II The Research & Development section of Queen Elizabeth Hospital Gateshead NHS Foundation Trust will now undertake qualitative research...

Research Part II The Research & Development section of Queen Elizabeth Hospital...

jinasc

•7 years ago

6 Replies

Fed up

Hi I been to my doc today after a long wait he increased my amotripdiline go back in 2 months I told him everything about the pain I feel he saidid my bloops...

Hi I been to my doc today after a long wait he increased my amotripdiline go bac...

Tarzan2

•7 years ago

5 Replies

Getting my come-uppance!

I have had PMR for nearly 2 years, and was diagnosed 19 months ago. At first I thought (naively I now realise) that the steroids would sort it all out, and...

I have had PMR for nearly 2 years, and was diagnosed 19 months ago. At first I t...

Mary63

•7 years ago

48 Replies

Today I am mostly ignoring my sore froat

I have done my other Bird Box in the style of Flicky Brush. I then decided to "Pimp my Ride" and made my dole poles sparkly. If I ever go out they will be...

I have done my other Bird Box in the style of Flicky Brush. I then decided to "P...

Estellemac

•7 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2017

Folliculitis

More information on MTX

Pain

Should I increase pred dose if crp doesn't normalise?

Per enquiry

The Lighter Side of PMR: Janet and John and The New Rheumatologist - Part Two. A Twist in The Tale? ;-)

I can never thank this group enough - THANK YOU

Update after Ireland trip

High Markers ESR 67 CRP 99

Help needed!

Is it temporal arteritis?

Good news today

Have I had PMR for years or just a month?

Newbie. Positive GCA. Biopsy.

First Flare Warning - PMR Hug

Reminder - Final Evaluation of the Steroid Taper Web Application

Could this be more than an infected tooth?

Lungs

Pred or PMR symptoms when tapering 15mgs to 10mgs?(alternate day doses)

PMR Newbee

vaginosis

Shall I laugh or cry !

Tapering...thankful for a good GP

That was the year that was

What else could it be

Scare this weekend

RESEARCH PART II

Fed up

Getting my come-uppance!

Today I am mostly ignoring my sore froat

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