I am back again, still on 2.5 mg predict but have to increase it to 5 again . I get that it's inevitable to go 2 steps forward and one back and although dissapointed,after 2 years of this. I am used to it.
What my disgruntled grouchy-ness (the only word I can find which aren't expletives ) is about today is the quality of my life. It's no fun, I could cope with it thinking that eventually it would get better but as the symptoms and pain of GCA and PMR decrease the utter exhaustion has got beyond me. I've been In and out of GPs had bloods taken and retaken with the only thing wrong being a bit of an increase in ear, back up to 30, hence the increase in pred. They are now sending me for a chest X-ray, nothing to indicate I need this but the doc says it's the last thing to check. There is no more they say they can do. When I said I can't cope, he just replied that there was nothing they could find therefor nothing more they can do. I asked again about low adrenaline and was told it was highly improbable.
I can barely get anything done. Totally downhearted . Sorry again for my pitty party, I just needed to try to express how I feel in the hope that I can let it go, straighten my face and get a grip.