Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2017

Back to square one with GCA

Just to refresh your recollection. I moved from Florida to New Jersey to see a special doctor in New York City because in Florida I had no guidance...

Just to refresh your recollection. I moved from Florida to New Jersey to see ...

Nap1

•7 years ago

7 Replies

The return of the awful fatigue ?

Hello Just a very quick post. I'm down to 1mg pred. now (just last week reduced down from 2mg to 1mg) and so far no return of the dreaded pain. However I do...

Hello Just a very quick post. I'm down to 1mg pred. now (just last week reduced...

MrsMac03

•7 years ago

15 Replies

Running on fumes at this point

Hi, it's me again - the "this is so damn miserable and feel like I can't take it anymore" woman. After 1.5 years of utterly disabling GCA symptoms (after never...

Hi, it's me again - the "this is so damn miserable and feel like I can't take it...

kellykel

•7 years ago

25 Replies

Want to take advantage of all our features? Just log in!

Really fed up everyone, help !!

Hi all, going to have a big moan as very depressed this week. My GCA has for some reason has come back on very bad indeed. I am still at 7.5mg and have not...

Hi all, going to have a big moan as very depressed this week. My GCA has for som...

Margaret1951

•7 years ago

32 Replies

joat

Hello again. How wonderful this Forum is. Have read such a lot of posts in the past couple of days, learnt a lot and wish I had known about them at the start...

Hello again. How wonderful this Forum is. Have read such a lot of posts in the p...

joat

•7 years ago

6 Replies

Parkers Hair Module

Before the Red Devil sat on my shoulder at Christmas. My life changed with PMR and I wanted a new beginning. I accepted the impact it had had on me in 2016....

Before the Red Devil sat on my shoulder at Christmas. My life changed with PMR a...

Estellemac

•7 years ago

3 Replies

Prednisolone Reduction

Hi Guys, Diagnosed with GCA in March 2015 and currently raking around 5.5mg a day using the this method of reduction :- 1 day new dose, 6 days old dose.. 1...

Hi Guys, Diagnosed with GCA in March 2015 and currently raking around 5.5mg a da...

AnthonyH

•7 years ago

9 Replies

PMR AND OPERATIONS!

Thanks everyone for all the replies to my last post ,I'm starting to realise that PMR does change everything. Just back from my walking holiday around lake...

Thanks everyone for all the replies to my last post ,I'm starting to realise tha...

66Mac

•7 years ago

21 Replies

Painful fingers - PMR? An experiment!

First, a recap to my recent posts about having painful fingers and slight swelling in both hands which appeared during a flare whilst trying to reduce steroids...

First, a recap to my recent posts about having painful fingers and slight swelli...

Lin-lou

•7 years ago

5 Replies

PMR or Fybro ?

I've been treated for PMR for the last fourteen months now however, last time I saw my rhummy he told me I was Steriod resistant and told me to taper off them...

I've been treated for PMR for the last fourteen months now however, last time I ...

Zellamze

•7 years ago

4 Replies

PMR and Purple Rice

I recently spoke with a woman who was singing the praises of Purple Rice in powder form from Thailand. It is meant to be very beneficial for pain and sleeping....

I recently spoke with a woman who was singing the praises of Purple Rice in powd...

hiandri

•7 years ago

8 Replies

Finally got a 'definitive' PMR diagnosis

Morning all. I wrote my first post on this forum 4 months ago (https://healthunlocked.com/pmrgcauk/posts/135186508/good-afternoon) and now, 9 months after my...

Morning all. I wrote my first post on this forum 4 months ago (https://healthunl...

Jontie

•7 years ago

7 Replies

relapse.... or not?

Hello - I'm new to the forum. I've recently tapered down to 2mg prednisolone at which point I started to get the old symptoms again having previously been fine...

Hello - I'm new to the forum. I've recently tapered down to 2mg prednisolone at ...

giraffe9

•7 years ago

9 Replies

Need to clarify DSNS tapering.

I apologize in advance for requesting revisiting the DSNS tapering system, as well as the other frequently referenced system, but I couldn't find them on this...

I apologize in advance for requesting revisiting the DSNS tapering system, as we...

cctraveler

•7 years ago

8 Replies

The Lighter Side - A Stern Warning from The Man from 'UNCLE'. OMG - what next..? :-/ ;-)

Ok You Lot - THIS SILLINESS MUST STOP!!! (triple underlined if I knew how to do it..) Following my recent post and heartfelt accolade to the Aunties here, a...

Ok You Lot - THIS SILLINESS MUST STOP!!! (triple underlined if I knew how to do ...

markbenjamin57

•7 years ago

29 Replies

Parkers Chiropody Session

Parkers not really enamoured with feet so I knew this would be trying for both of us. My toe claws were getting a bit long and starting to grow in. With PMR...

Parkers not really enamoured with feet so I knew this would be trying for both o...

Estellemac

•7 years ago

24 Replies

Sore Throat

Now I don't get sore throats but do have the odd cold or sinus infection. As I am on Pred and waiting for my hip operation I decided to panic in case it was an...

Now I don't get sore throats but do have the odd cold or sinus infection. As I a...

Estellemac

•7 years ago

4 Replies

Breakthrough jaw pain st 60 mgs. Prednisone.

Is it advised to not eat foods that need hard chewing while trying to rid this symptom?

Is it advised to not eat foods that need hard chewing while trying to rid this s...

Aleish

•7 years ago

2 Replies

Prednisone dosing

Morning from North Carolina Saw GP yesterday and gave him a copy of Bristol protocol, he read it, listened to me and is following it. Had been on 15 mg for a...

Morning from North Carolina Saw GP yesterday and gave him a copy of Bristol prot...

barbthy

•7 years ago

6 Replies

Thin skin

We all experience thining skin from the steroids , allways had delicate skin very fair mum would say can't put her in white she disappears. Hubby asked me this...

We all experience thining skin from the steroids , allways had delicate skin ver...

olive2709

•7 years ago

14 Replies

PMR or Lime Disease?

Visiting my sister in Boston and she says the blood test I had for lime disease is only 50% accurate and thinks I should pursue this further since symptoms...

Visiting my sister in Boston and she says the blood test I had for lime disease...

Sandy1947

•7 years ago

42 Replies

My distraction for today

When I had two good hips, could walk and a brain I worked with young people who were homeless. I have adapted now to suit my abilities. I am creating new...

When I had two good hips, could walk and a brain I worked with young people who ...

Estellemac

•7 years ago

13 Replies

The Lighter Side of PMR / GCA - Let's hear it for the 'Aunties'?! ;-)

Greetings to all here, whether you are a PMR / GCA Veteran, Survivor, Newbie, Confused.com, or even the bloke / woman at the bus stop. Either way, I address...

Greetings to all here, whether you are a PMR / GCA Veteran, Survivor, Newbie, Co...

markbenjamin57

•7 years ago

55 Replies

Tiny- tim again

Thanks for all the helpful answers to my recent post about needing more reassurance .Saw Dr today who confirmed the labyrinthitis.Said the Epley manowevre...

Thanks for all the helpful answers to my recent post about needing more reassura...

Tiny_Tim

•7 years ago

10 Replies

Itching

I also have begun to itch . After five years i did not blame the ptednisone ... i blamed the actemra shot and was told to take benadryl. That did work. I...

I also have begun to itch . After five years i did not blame the ptednisone ......

30048

•7 years ago

14 Replies

Massages & flare dosage

Have been browing on here and read something about massages being good/not good with PMR and now I can't find the posts! I am approaching a "big 0" birthday...

Have been browing on here and read something about massages being good/not good ...

Lin-lou

•7 years ago

31 Replies

Back from vacation, pacing story ends!

Hello All, Thanks for your comments and support to my previous post on pacing and my vacation. I read somewhere that someone referred to PMR as the "I don't...

Hello All, Thanks for your comments and support to my previous post on pacing an...

Tj2017

•7 years ago

4 Replies

Small update on small reductions.

Hello all, I started reducing in 1/2 mgs 8 weeks ago and all seems to be progressing well. I have gone from 13mg to 11.5mg (most recent drop 5 days ago) and...

Hello all, I started reducing in 1/2 mgs 8 weeks ago and all seems to be progres...

IdasMum

•7 years ago

8 Replies

Is prednisone the only answer?

In a bit of a quandary...I have finally had blood tests done, ( CRP at 120, and ESR at 39) after years of being told by doctors and specialists that I had...

In a bit of a quandary...I have finally had blood tests done, ( CRP at 120, and ...

anicholson

•7 years ago

38 Replies

Actemra FDA approved

For those of us in the US, it is great to note that the FDA has expanded the use of Actemra (tocilizumab) to treat giant cell arteritis in adults. This is the...

For those of us in the US, it is great to note that the FDA has expanded the use...

Nruble

•7 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2017

Back to square one with GCA

The return of the awful fatigue ?

Running on fumes at this point

Really fed up everyone, help !!

joat

Parkers Hair Module

Prednisolone Reduction

PMR AND OPERATIONS!

Painful fingers - PMR? An experiment!

PMR or Fybro ?

PMR and Purple Rice

Finally got a 'definitive' PMR diagnosis

relapse.... or not?

Need to clarify DSNS tapering.

The Lighter Side - A Stern Warning from The Man from 'UNCLE'. OMG - what next..? :-/ ;-)

Parkers Chiropody Session

Sore Throat

Breakthrough jaw pain st 60 mgs. Prednisone.

Prednisone dosing

Thin skin

PMR or Lime Disease?

My distraction for today

The Lighter Side of PMR / GCA - Let's hear it for the 'Aunties'?! ;-)

Tiny- tim again

Itching

Massages & flare dosage

Back from vacation, pacing story ends!

Small update on small reductions.

Is prednisone the only answer?

Actemra FDA approved

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