Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for July 2017

Something to look at (it's graphic!)

Hi all, I've found this picture by coincidence on the web and I think it shows so very clearly how complex the artery system is. It might even help to explain...

Hi all, I've found this picture by coincidence on the web and I think it shows s...

•7 years ago

Now Reducing Prednisone

Hi, I am new to this type of forum, but what I have read is very informative. I have been on prednisone since Feb, 2016 starting at 80 mg for GCA. I have only...

Hi, I am new to this type of forum, but what I have read is very informative. I ...

•7 years ago

Hot flushes

I have been taking pred for almost two years, I am at the moment down to 7.5. When ever I exert my self a little more than I should, walk up hills or go...

I have been taking pred for almost two years, I am at the moment down to 7.5. Wh...

•7 years ago

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Time between fioricet and hydrocodone

Hi everyone, I get around 20+ migraines a mont (please do not offer me new things to try, I have had them since 12, they are not caused by prescriptions, they...

Hi everyone, I get around 20+ migraines a mont (please do not offer me new thing...

•7 years ago

newly diagnosed

I am not symptom free on current dosing but pain not as bad as when not on prednisone. The fatigue and brain fog are terrible. Wondering what is the best...

I am not symptom free on current dosing but pain not as bad as when not on predn...

•7 years ago

Elevated labs

My CRP is high at 1.16 normal is <0.80 My ESR is 31 normal is 0.30 my normal has always been 14-15. I also have alternate pains in my gallbladder area and also...

My CRP is high at 1.16 normal is <0.80 My ESR is 31 normal is 0.30 my normal has...

•7 years ago

Should we start a 'Celebrating the Positives Only' post?

Hi All I only joined this community a couple of days ago and have to say am overwhelmed with the support already received. 😄 Thank you. Reading many more...

Hi All I only joined this community a couple of days ago and have to say am over...

•7 years ago

Happy Anniversary?

On 2 July last year, very newly widowed, downsizing and moving house I had 2 days to paint bedroom walls before the carpets were fitted. My diary records...

On 2 July last year, very newly widowed, downsizing and moving house I had 2 day...

•7 years ago

And along came.........

Hi all, I had been having a good spell and managed to get down to 22.5. The magic number I reached last time before a flare sent me back up again. My blood...

Hi all, I had been having a good spell and managed to get down to 22.5. The mag...

•7 years ago

Muscle and tendon tears from steroids

Pro... we have touched on this before but it has finally happened. Along with my steroid myopathy I have torn the ligament on my knuckle and just recently two...

Pro... we have touched on this before but it has finally happened. Along with m...

•7 years ago

I feel like a yoyo, Do I have GCA or not?

I read with interest a lot of the posts but I still don't know if I have GCA or not. My 1st visit to GP, end of Sep 2016 - she suspected GCA and started me on...

I read with interest a lot of the posts but I still don't know if I have GCA or ...

•7 years ago

GCA meds

Having followed a recent link to the Patient info site, I read that they seem all in favour of aspirin and adding omeprazole to counteract the side effects of...

Having followed a recent link to the Patient info site, I read that they seem al...

•7 years ago

Shoulder pain

I have had P.M.R. for four years. I am also just getting over a fractured sacrum. I am reducing from 15 mg. using the dead slow method and am getting on ok....

I have had P.M.R. for four years. I am also just getting over a fractured sacrum...

•7 years ago

Alternative treatment

There is some evidence that a virus may trigger PMR and in the case of GCA the chickenpox virus is found in artery biopsy. Therefore I started wth a large dose...

There is some evidence that a virus may trigger PMR and in the case of GCA the c...

•7 years ago

Worst headache ever

First, I was tested for GCA last month and got a clear result. I've had PMR for 18 months and I have finally been successfully weaning to lower doses of...

First, I was tested for GCA last month and got a clear result. I've had PMR for ...

•7 years ago

Low Potassium

Good Morning I am writing this in hopes of helping with my experience I have had to struggle with my Gp to believe that I was convinced some of my symptoms...

Good Morning I am writing this in hopes of helping with my experience I have ha...

•7 years ago

What a week!

The day before yesterday I was going to post on how frustrated and angry that I am because of all the pain and immobility issues I have and I am only 54. Yet...

The day before yesterday I was going to post on how frustrated and angry that I ...

•7 years ago

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