Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,312 members • 38,049 posts

All posts for April 2017

Update on my PMR journey

Hi Everyone, I am still feeling much better due to changing the time of taking my Pred to approx 4am. However, as I already have gastric problems (for more...

Hi Everyone, I am still feeling much better due to changing the time of taking m...

PatB1948

•7 years ago

12 Replies

It's me again.

Am getting no help as to why I am not absorbing the prednisone. " Just don't know ". I am up to 25 mgs basically on my own math. If I was getting 3 on a dose...

Am getting no help as to why I am not absorbing the prednisone. " Just don't kno...

30048

•7 years ago

18 Replies

light headed

for the last couple of weeks I have been feeling very lightheaded. My blood pressure is fine (I have a machine at home) I am not reducing steroids at the...

for the last couple of weeks I have been feeling very lightheaded. My blood pres...

kingharold11

•7 years ago

4 Replies

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Struggling

Hello, I'm knew and found this site today. I've been diagnosed by PMR and have had this for 3 years or so. I take pred and am now down to 2 mg every other day...

Hello, I'm knew and found this site today. I've been diagnosed by PMR and have h...

Bobbury

•7 years ago

4 Replies

Reducing steroids

I am currently reducing my steroids from 40mg to 10mg over two months as recommended by my consultant. I was told to go down by 5mg every fortnight but I have...

I am currently reducing my steroids from 40mg to 10mg over two months as recomme...

Cobnut

•7 years ago

4 Replies

PMR

I was diagnosed last year and have had a bad relapse 2 weeks ago my steroids have increased but I feel no better is there any hope

I was diagnosed last year and have had a bad relapse 2 weeks ago my steroids hav...

ANGR52

•7 years ago

9 Replies

Neck Problem

Good morning folks. First diagnosed with pmr 5yrs ago,had varying ailments because of the condition.Over the last 3-4 weeks have had severe pain and...

Good morning folks. First diagnosed with pmr 5yrs ago,had varying ailments becau...

paisleyman74

•7 years ago

5 Replies

Smiling

Morning all I can't believe it but I am sat here smiling over a bowl of porridge It is the first time for I don't know how long that I have been able to make...

Morning all I can't believe it but I am sat here smiling over a bowl of porridge...

Rusty8

•7 years ago

7 Replies

Error

I meant to say my doctor said bad news you got diabetes now

georgemichael-

•7 years ago

1 Reply

Very confused with it all

I have been on 15 to 20mg of ped for nearly three years. I have had y ESR ? checked twice which I asked for. waiting for result now don't think my doctor is...

I have been on 15 to 20mg of ped for nearly three years. I have had y ESR ? chec...

georgemichael-

•7 years ago

10 Replies

Actemra Effective at Maintaining Steroid-Free Remission In GCA

https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-actemra-effective-at-maintaining-steroid-free-remission-in-patients-with-giant-cell-arteritis/

https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-actemra-effect...

Marie1479

•7 years ago

2 Replies

Stelara/ustekinumab for GCA treatment

Hello! I know this site is located in the UK, but I was hoping that, whereas I live in the USA, I could still be a part of it. If I have to be a UK resident,...

Hello! I know this site is located in the UK, but I was hoping that, whereas I ...

MzDisney

•7 years ago

19 Replies

Logging Out Problems

I've been informed that there is now a fix for these issues, but if you are still having problems please let me know.

I've been informed that there is now a fix for these issues, but if you are stil...

polkadotcom

•7 years ago

11 Replies

Hello from a new member

Just a hello from me- I was just DX- with PMR last month. I am on prednisone and just started Methotrexate 2 weeks ago. I am just learning about this...

Just a hello from me- I was just DX- with PMR last month. I am on prednisone and...

Hidden

•7 years ago

52 Replies

Thank you

Hello , just want to thank everyone for the posts , I have been on a huge learning curve since being diagnosed Jan and have found the most help from this site...

Hello , just want to thank everyone for the posts , I have been on a huge learni...

Chrob

•7 years ago

2 Replies

Closer than Cardiff

Hello, I do wish I could get to the Cardiff meeting on Friday this week but it's a long way from where I live near Lampeter in Ceredigion, so I wondered if...

Hello, I do wish I could get to the Cardiff meeting on Friday this week but it's...

Zebedee44

•7 years ago

10 Replies

there is a way out of this painful, stiff PMR!

Dear friends, I was DX with PMR in February this year. I refused taking the prednisone. I take Advil 2 in morning, 2 in evening. Along with this, I changed...

Dear friends, I was DX with PMR in February this year. I refused taking the pred...

health51

•7 years ago

50 Replies

Swollen body

I was diagnosed with GCA at the end of February. I'm now on 35mgr of preds butI am carrying so much fluid I find it hard to breath. My ankles and thighs no...

I was diagnosed with GCA at the end of February. I'm now on 35mgr of preds butI ...

sslhayes

•7 years ago

22 Replies

Advise needed

I am a lot of medication for osteoporosis, take iron tabs, accrete for bones, levothyroxine, emozol etc daily. Had a bout of D&V last night so decided on a...

I am a lot of medication for osteoporosis, take iron tabs, accrete for bones, le...

Gillymar

•7 years ago

6 Replies

Bad dreams

Does anyone else have bad dreams whilst tapering,currently on 9mg recently tapered from 9.5 and having really vivid bad dreams.

Does anyone else have bad dreams whilst tapering,currently on 9mg recently taper...

Hidden

•7 years ago

18 Replies

Help with notifications list please

I hate to ask this kind of question here but I can't seem to get an answer Under The Help menu. Is there a way to delete individual notifications under the...

I hate to ask this kind of question here but I can't seem to get an answer Under...

Amkoffee

•7 years ago

11 Replies

Painkillers

I don't seem to read any posts about painkillers. I was in pain while reducing from 15mg to 12.25 and was prescribed Solpadol 30mg/500mg which I have found...

I don't seem to read any posts about painkillers. I was in pain while reducing f...

hughessmith

•7 years ago

20 Replies

Best day yet!

I decided to take my 15mg Pred at 4am as suggested by some of you. I'm glad to report that today I have had the best day since I was diagnosed. Virtually no...

I decided to take my 15mg Pred at 4am as suggested by some of you. I'm glad to ...

PatB1948

•7 years ago

38 Replies

Coated or uncoated Pred?

Hi Since starting on this journey in Nov 2014 I have been taking uncoated Pred except for a period of about a week when my consultant prescribed coated. I took...

Hi Since starting on this journey in Nov 2014 I have been taking uncoated Pred e...

Jackoh

•7 years ago

29 Replies

Yet another AI disease

Hi All, I have just been diagnosed with this two days ago. My GP sent me to A&E as she thought I may have had a blood clot as the pain across my chest,...

Hi All, I have just been diagnosed with this two days ago. My GP sent me to A&E...

Smell65

•7 years ago

6 Replies

Stalled at 3mg

Hello All, I have had PMR since mid 2013 and have dropped from 20mg to 3mg. I used the slow reduction method to get this far down taking 26 days to go from 3...

Hello All, I have had PMR since mid 2013 and have dropped from 20mg to 3mg. I us...

Whytee

•7 years ago

5 Replies

Methotrexate and blood tests?

Hi All. Could just do with a bit of advice about MTX and blood tests. Dr Hughes put me on MX (on top of my Pred) on the 28th March so have been on it for...

Hi All. Could just do with a bit of advice about MTX and blood tests. Dr Hughe...

SusyTe

•7 years ago

23 Replies

PMR is back yet again

Hi all I'm new on this post, have had PMR for 2 years now, have tried twice now to lower pedi and come off of this medication, 2nd time stoped medications...

Hi all I'm new on this post, have had PMR for 2 years now, have tried twice now ...

Suesie54

•7 years ago

43 Replies

Stupidity comes before a fall!!'

Well have been doing fantastically well until my own stupidity took over. I guess we all learn by our mistakes! Diagnosed in Feb and by last week I was down...

Well have been doing fantastically well until my own stupidity took over. I gues...

JulieR2

•7 years ago

26 Replies

Best Advice

Good day Since I am only a month and half into this , I dont have much wisdom to share. But I will say the advice about low carb,( i strive for none with...

Good day Since I am only a month and half into this , I dont have much wisdom to...

galp

•7 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2017

Update on my PMR journey

It's me again.

light headed

Struggling

Reducing steroids

PMR

Neck Problem

Smiling

Error

Very confused with it all

Actemra Effective at Maintaining Steroid-Free Remission In GCA

Stelara/ustekinumab for GCA treatment

Logging Out Problems

Hello from a new member

Thank you

Closer than Cardiff

there is a way out of this painful, stiff PMR!

Swollen body

Advise needed

Bad dreams

Help with notifications list please

Painkillers

Best day yet!

Coated or uncoated Pred?

Yet another AI disease

Stalled at 3mg

Methotrexate and blood tests?

PMR is back yet again

Stupidity comes before a fall!!'

Best Advice

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