Morning all I can't believe it but I am sat here smiling over a bowl of porridge

It is the first time for I don't know how long that I have been able to make my breckfast and a cupa without at times ending up crying with pains

I had pains on doing it but I could cope with them thinking what it would be like to do these things with no pain I know this isint going to happen I upped my steroids from 8mg to 10 mg have sent a letter to doc asking her views as I'm sure my spinal stenosis isint the problem causing my biggest problem at moment Since doing this the back pains are showing themselves so I do believe I know the different in the pains Has anyone had similar problems and what do I do if one of the docs seem to say it's not pmr when the renal when picked it up apologised for not picking it up earlier that was a year and a half ago

Great when I had higher dose in beginning then when got told to lower it I did and no one has mentioned it again so you can imagine pain I have been in so please keep fingers crossed for me I don't get told to lower it again

Sorry for the rant

Porridge was good lol

3 Replies

  • Rusty, I feel I can almost see you smiling over that bowl of porridge! It's amazing how one little positive sign of light on the horizon can boost our morale. Well done!

    I do so understand the complications of having something like spinal stenosis thrown into the mix alongside PMR. For me it was spondylolisthesis and it could at times be so difficult to know which pain was due to which condition. However, somehow along the journey, I did find it easier to recognise which was which, for instance the sciatic pain on and off down one leg would rear its ugly head from time to time and, in my case, I knew this was spondylolishesis-related. I found that donning a simple support girdle for a couple of days at such times was very helpful. Some people get relief by using a TENS machine.

    As for you being concerned about being told to lower your dose again, only you will know how and when to do that, simply by your symptoms at the time, especially if you don't have ESR and CRP blood test markers to guide you together with those symptoms. Certainly, if increasing from 8 to 10mgs has made you feel more comfortable then that is the dose you need for a little longer yet....and so that you can keep smiling over that bowl of porridge!

  • Ah lovely, soak that feeling up.

  • Tell your doctor quite firmly what has happened - and enjoy the relief. I still remember that first day originally when suddenly it didn't hurt to exist!

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