I have just been diagnosed with this two days ago. My GP sent me to A&E as she thought I may have had a blood clot as the pain across my chest, shoulders etc was quite bad and my chest sounded ok. However blood tests and X-ray ruled this out. I was showing inflammation across my rib cage and also stomach and legs plus the stiffness throughout my body was horrendous. I already suffer with Sjögren's syndrome and ulcerative colitis so I have thought for a long time that these symptoms were due to these AI diseases but it seems not. Medication wise I take hydroxychloroquin plus mtx injections for my sjogrens and mesalazine and infliximab infusions for my UC. The hospital stated for this new AI that I should be taking prednisone on a daily basis however I can't take it due to long term use giving me sialadenosis of my salivary glands so instead I am to have a steroid injection every 4 weeks. Is this normal if you can't prednisone? Are there any other meds that help? I must admit though that the inflammation has gone right down and the stiffness is a hell of a lot better.
I've always said that when you have one AI the rest just follow😓