Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for April 2017

The Bit I Don't Understand

I accept that the Prednisalone I take is only dealing with the inflammation from the underlying Auto- immune disease and as PMRpro reminds us the disease is...

I accept that the Prednisalone I take is only dealing with the inflammation from...

SheffieldJane

•8 years ago

16 Replies

Flare or relapse?

Hi. I have seen reference to 'flares' and know they don't mean the trousers I wore in the 1970s.. Could someone explain the difference between a flare and a...

Hi. I have seen reference to 'flares' and know they don't mean the trousers I wo...

granny-b

•8 years ago

14 Replies

Puzzled

Had diag of PMR, took pregnasone for 1.5 years, been off since 8/16. Had heart palpitations, went to emergency, monitored for 8 hours, nothing. They did an...

Had diag of PMR, took pregnasone for 1.5 years, been off since 8/16. Had heart ...

Js94947

•8 years ago

30 Replies

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New to PMR

Hello, I have had this since mid March. However my pains started in the thighs, then hips, groin and knees and it was only after this that I got the pains in...

Hello, I have had this since mid March. However my pains started in the thighs, ...

edmonton

•8 years ago

38 Replies

Newbie

Hi all I'm new on here and to PMR I had been going to doc with sore throat, tongue and aching hips shoulders etc since January. Doc kept doing blood test's...

Hi all I'm new on here and to PMR I had been going to doc with sore throat, to...

MichelleH16

•8 years ago

14 Replies

Query re vaccinations

Hi friends, I have one question , is it wise to have the "flu vaccination" while on steroids, and methotrexate? I know it isn't a live virus used, but would...

Hi friends, I have one question , is it wise to have the "flu vaccination" whil...

Islandgirl50

•8 years ago

30 Replies

Prednisone and Metformin - PMR

I have been on 15mg of Prednisone since 1 April which is working fine and will drop to 13.5mg on 1 May. My doctor wants me to take Metformin 500mg twice a day,...

I have been on 15mg of Prednisone since 1 April which is working fine and will d...

hiandri

•8 years ago

23 Replies

feeling so much better...

Happy Friday everyone..its been a while but my life has been even more chaotic and messy than usual. I now have some space and wanted to share that I am...

Happy Friday everyone..its been a while but my life has been even more chaotic a...

Hidden

•8 years ago

1 Reply

Hello I'm new here

Had GCA confirmed in January 2015 started on 60mg predisone straight away and thought I would be finished with the pred in about a year. Well here we are just...

Had GCA confirmed in January 2015 started on 60mg predisone straight away and th...

optermist

•8 years ago

12 Replies

Introducing myself

Hi everyone, my name is Kelly. First, I want to say how many times I have read everyone's posts and found such solace in knowing I am not alone. I am so very...

Hi everyone, my name is Kelly. First, I want to say how many times I have read ...

kellykel

•8 years ago

10 Replies

Dead Slow and headaches (mainly)

First of all....this little one arrived 2 weeks ago today and I am impatiently waiting another 3 weeks to visit her in the UK. Her name is Thea. So, tomorrow...

First of all....this little one arrived 2 weeks ago today and I am impatiently w...

IdasMum

•8 years ago

12 Replies

Research on inflammation markers?

Can anyone provide a link to recent research indicating that a proportion of GCA patients do not present with unusual blood inflammation markers? I believe I...

Can anyone provide a link to recent research indicating that a proportion of GCA...

Ronnie101

•8 years ago

7 Replies

Dry mouth

Morning does any one here get a dry mouth about 30-45 mins after taken steroids thanks

Morning does any one here get a dry mouth about 30-45 mins after taken steroids ...

Rusty8

•8 years ago

3 Replies

Really goofed

Hi I take my pred at 330-4:00 am Tonight while cutting pill for my second day of 25 mg dose for my Fri morning dose ( decreases from 30) at 9 pm, I just...

Hi I take my pred at 330-4:00 am Tonight while cutting pill for my second day of...

galp

•8 years ago

9 Replies

TUMERIC SUPPLEMENTS

Hallo everyone. Just wondered if anybody was taking a tumeric supplement along with the pred. Has it helped anyone or caused problems. Thanks for any advice...

Hallo everyone. Just wondered if anybody was taking a tumeric supplement along ...

Reethebeat

•8 years ago

12 Replies

When do you take your Prednison?

As a result of another thread I found myself wondering if the time I take my 60 mg Prednisone does influence my sleep and my well-being during the day. Now I'd...

As a result of another thread I found myself wondering if the time I take my 60 ...

Akino

•8 years ago

23 Replies

No steroids for me

I was diagnosed with PMR 9 months ago. Started on prednisone. Total relief within two days. Hurray! That is until the side effects kicked in. Weight gain,...

I was diagnosed with PMR 9 months ago. Started on prednisone. Total relief withi...

katkawon

•8 years ago

54 Replies

Vit D3 deficiency?

Following blood tests taken at the request of my rheumatologist, I've had a letter from him advising me to take 1 VitD3 1000iu (Cholecalciferol) daily for the...

Following blood tests taken at the request of my rheumatologist, I've had a lett...

maria40

•8 years ago

14 Replies

Return of GCA

Hi I have not posted on this site for a while. I had GCA 9 years ago and it took me a long time to come off steroids I had to reduce with the help of...

Hi I have not posted on this site for a while. I had GCA 9 years ago and it took...

m-duke123

•8 years ago

11 Replies

Travelling and prescriptions for Pred.

Hi, In May I will be travelling from NZ to the USA in May for one month. Losing your Pred. for whatever reason is always a concern. Can I get a prescription...

Hi, In May I will be travelling from NZ to the USA in May for one month. Losing ...

hiandri

•8 years ago

12 Replies

So far, so good!

Hi everyone, Just a wee update to let you know how I'm getting on with my Pred. I am now eight days in on 15mg and although I have had an improvement in...

Hi everyone, Just a wee update to let you know how I'm getting on with my Pred. ...

PatB1948

•8 years ago

18 Replies

Pride before a fall

Hi Been treated for GCA since November 2016. Slowly reduced by 2.5 mg at a time and got down to 25. Recently had a holiday where I felt the most like me I...

Hi Been treated for GCA since November 2016. Slowly reduced by 2.5 mg at a time...

Elaine-W

•8 years ago

10 Replies

The Lighter Side - Our recent Log-in problems and a Useful Conversation with ‘Professor' Stan ;-)

Greetings All I’ve followed with interest your numerous posts about the frustrations experienced with accessing this site recently - me included....

Greetings All I’ve followed with interest your numerous posts about the frustr...

markbenjamin57

•8 years ago

25 Replies

Help required to test and evaluate a Steroid Taper Web Application

Dear PMRGCAUK HealthUnlocked Forum Members, I have had PMR since January 2015 and during that time have been studying for a BSc Degree in Computing & IT. For...

Dear PMRGCAUK HealthUnlocked Forum Members, I have had PMR since January 2015 ...

Sandra_123

•8 years ago

32 Replies

Scared parent of adult child with Down Syndrome diagnosed today with temporal arterilitis

My 32 year old son who has Down Syndrome was diagnosed today with temporal arterilitis. Tim aka Waffle has been getting swelling and pain throughout his body...

My 32 year old son who has Down Syndrome was diagnosed today with temporal arter...

Son3

•8 years ago

27 Replies

Cardiff meeting

There will be a meeting at Cardiff Central Library on Friday 28th April at 11am till 1, on the 4th floor, turn left from the lift.

There will be a meeting at Cardiff Central Library on Friday 28th April at 11am ...

slewis

•8 years ago

9 Replies

Just been diagnosed

Hello i have been diagnosed in jan this year with gca. I started on 60mg of pred but been tapering down currently on 12.5mg .feeling alright except for...

Hello i have been diagnosed in jan this year with gca. I started on 60mg of pred...

160916

•8 years ago

13 Replies

probably over thinking but interested

Hello Trying to figure out my hitting the wall at around 3 o'clock everyday. Since taking my 30 mg ( after60-40 going to 20 on Friday) at 2:00 am and going...

Hello Trying to figure out my hitting the wall at around 3 o'clock everyday. Sin...

galp

•8 years ago

11 Replies

Today's Answer

From the horse's mouth Dear polkadotcom, Our tech team are working on a fix at the moment. Unfortunately, this technical fault does not seem to be easy to...

From the horse's mouth Dear polkadotcom, Our tech team are working on a fix at ...

polkadotcom

•8 years ago

17 Replies

Weight gain at the end of treatment

I suffer from PMR and have been prescribed prednisolone I am currently on now 2mg per day, having worked my way down from 40mg, I excercise 3-4 days a week and...

I suffer from PMR and have been prescribed prednisolone I am currently on now 2m...

Suziib

•8 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2017

The Bit I Don't Understand

Flare or relapse?

Puzzled

New to PMR

Newbie

Query re vaccinations

Prednisone and Metformin - PMR

feeling so much better...

Hello I'm new here

Introducing myself

Dead Slow and headaches (mainly)

Research on inflammation markers?

Dry mouth

Really goofed

TUMERIC SUPPLEMENTS

When do you take your Prednison?

No steroids for me

Vit D3 deficiency?

Return of GCA

Travelling and prescriptions for Pred.

So far, so good!

Pride before a fall

The Lighter Side - Our recent Log-in problems and a Useful Conversation with ‘Professor' Stan ;-)

Help required to test and evaluate a Steroid Taper Web Application

Scared parent of adult child with Down Syndrome diagnosed today with temporal arterilitis

Cardiff meeting

Just been diagnosed

probably over thinking but interested

Today's Answer

Weight gain at the end of treatment

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