Stalled at 3mg: Hello All, I have had PMR since mid... - PMRGCAuk

PMRGCAuk

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Stalled at 3mg

Whytee profile image
5 Replies

Hello All,

I have had PMR since mid 2013 and have dropped from 20mg to 3mg. I used the slow reduction method to get this far down taking 26 days to go from 3 and a half mg to 3mg. I have been struggling at 3mg for some days and I am concerned that a flare up might be developing. Should I go back to 3 and a half to be safe? I don't know if trying to cope at 3 will result in a total failure and a return to a much higher dose.

Regards

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Whytee profile image
Whytee
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5 Replies
PMRpro profile image
PMRproAmbassador

If it were me I would - possibly even 4mg for a few days first. And rest at 3.5mg for a month or so. It is a very low dose - and I really never think it is worth spoiling the ship for a ha'p'thworth of tar!

Whytee profile image
Whytee in reply toPMRpro

Thank you for your quick and helpful response. I shall try the 4mg for a few days and then the 3.5 as you suggest.

suziq123 profile image
suziq123

I think that is the best way. I was headed to 5mg and found in was fighting pain instead of living life. I have gone back up to 7 for 2 weeks as that is where I am essentially pain free. I am now starting the slow taper, and thanks to everyone here I actually found it written out instead of just talked about as has been the case on other sights.

PMRpro profile image
PMRproAmbassador in reply tosuziq123

It is written out on all 3 PMRGCA forums in the UK and someone asks I always give the link.

I say so often that there is no virtue in taking too low a dose to manage the pain and feel well - you have to have benefits to balance out the downsides of pred.

suziq123 profile image
suziq123 in reply toPMRpro

Pmrpro I couldn't agree more and I am optimistic it is going to work. I just found this forum recently in the past I was reading social media groups and found all sorts of opinions and self diagnosis and not much helpful information. This forum is spectacular

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