I have posted a couple of times and have had lots of good advice from you all.
Its 7 months since my wife lost her sight to GCA. She is finding it very difficult to cope.
But we are in the dark (sorry for the pun) about what to expect with her condition. She is very tired all the time, sleeps all the time and this seems to be getting worse rather than better as time goes on. Except for her appetite which is good, this is very much how she was before she went blind. We saw the rheumy 4 months ago and he put her on a reducing dose of prendisalone ,currently on 12.5, and said to see him again in six months but we have not had an appointment come through yet.
What we don't know is this normal and a result of the steroids or is there something else going on. I am so worried about her. We are seeing our GP later today and I will go in with her and try to get some answers and ask some questions. Joyce tends to be the brave little soldier at the docs and just accepts what he says.
No one we talk to seems to have any idea what we should expect or even how her illness will progress and what has caused it. At the moment just getting washed and dressed to go to the docs is almost all she can do. As GCA affects the arteries we are worried that it may be affecting other organs.
Has anyone else been through this and what was the result?
Thank you for reading this, just putting this down on paper helps .
Barry & Joyce