I was diagnosed in June 15 with PMR/CGCA after 5 years of not being diagnosed. 40mgs preds was prescribed and I am still unable to be comfortable below 20mgs. Intermittent pain between 20 and 18 but once down to 17.5 headache and general pain and feeling of illness.
I read an article healthline.com whiich says:
"Your outlook for temporal arteritis will depend on how quickly you’re diagnosed and start treatment. Untreated temporal arteritis can cause serious damage to the blood vessels in your body. Call your doctor if you notice new symptoms. This will make it more likely that you’ll be diagnosed with a condition when it’s in the early stages."
So my question is, if not diagnosed quickly does it take longer to reduce the steroids? Has long term damage been done to the blood vessels?
Thank y ou