I'm finding it so helpful to read all your posts and to learn from everyone's experience of living with this condition. Particularly as its not widely known and most people (including me!!) had never heard of it before my GP suggested it in Jan and rheumatologist diagnosed this month.
I've also noticed I seem to be waking up earlier- hence writing this at 5.30 on a Saturday morning!! Its not the pain waking me (as it was before diagnosis) but wondered if its the medication or condition or both?!
I can see from other comments that managing stress and not overdoing it seems to be an important factor in not triggering relapses etc...Coincidentally Ive just completed an 8 week mindfulness course and think continuing regular meditation is going to help so much as part of the day to day living.
I'm very interested in peoples experience of factors that cause it at the beginning? Does it seem to be just 'one of those things' or are there similarities in peoples life styles before onset?
The reason for asking is that I work as a Counsellor (for past 10 years) and consider myself to be very self aware. I am always very interested to understand contributory factors. Im only 51 and consider myself to have a fairly healthyish lifestyle. Prior to onset I had done yoga for the previous 3 years, have a dog so walk daily, have a good work life balance and understand the importance of self care particularly with the job I do. I also believe and from my experience of working with clients that alot of emotional stuff is held in the body and the mind/body connection.
As I said I'm not sure whether this condition is very random or whether my work/other factors maybe affecting me more than I had appreciated. In the past (and all my life!) I have always been the strong, capable one with responsibilities from an early age . I'm finding it a whole new experience allowing people to be there for me and actually quite enjoying some of that!!
Would be really interested to hear your thoughts and experiences? Thanks so much in advance.
Feeling tired now, may go back to bed!!