Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2015

Pain and swelling in left leg, neck and hips, restricted walking with odema in foot and ankle area.

Good morning, Please will you give me some time to vent my frustration. I know so many of you will have probably encountered a similar problem with your...

Good morning, Please will you give me some time to vent my frustration. I know s...

Hidden

•9 years ago

3 Replies

GCA found in Aorta

Hi. I am new to the group and was wondering if anyone has had a similar diagnosis of GCA. In Jan 2015 I went to GP with consistent burning head pain, left...

Hi. I am new to the group and was wondering if anyone has had a similar diagno...

Caro12line

•9 years ago

29 Replies

PMRGCAuk London Support Group meeting

Hello everyone - sorry for the late posting - we've had issues with accessing our email and both Sophy and Anne have new jobs so are a bit distracted. Hope...

Hello everyone - sorry for the late posting - we've had issues with accessing ou...

Green_girl

•9 years ago

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Tocizilumab

Does anyone know anything abut tocizilumab (Actomorole) not sure of spelling. It is an IV now being used for Giant Cell Arteritis patients? My doctor said...

Does anyone know anything abut tocizilumab (Actomorole) not sure of spelling. I...

cassey1879

•9 years ago

6 Replies

Could pain in hips and legs be due to reduction in pred?

I had good news last Friday from the consultant: that my blood test was normal and also showed no side-effects from Methotrexate. He therefore reduced my...

I had good news last Friday from the consultant: that my blood test was normal ...

PenelopeVita-Finzi

•9 years ago

6 Replies

Steroid card

Do we need to carry a steroid card ? If so who do we ask for one as l haven't been offered one ? Alice

Do we need to carry a steroid card ? If so who do we ask for one as l haven't be...

alice1940

•9 years ago

24 Replies

What's going on

Hi just had results from rheumatology after referral from GP after flare up. Al results from blood test normal apart from creatinine kinase 529 units/L still...

Hi just had results from rheumatology after referral from GP after flare up. Al ...

di-bach

•9 years ago

5 Replies

Pain Fingers & Toes

Can PMR cause intermittent pain in Fingers & Toes, during the past three weeks I have developed a intense burning sensation across the top of my middle toe it...

Can PMR cause intermittent pain in Fingers & Toes, during the past three weeks ...

JOHNONE28

•9 years ago

4 Replies

Stabbing centre back pain

Hi everyone well I was hospitalised for 3 days following crippling pain in the centre back radiating to both shoulders and ribs. Shallow breathing was murder!...

Hi everyone well I was hospitalised for 3 days following crippling pain in the c...

Hidden

•9 years ago

9 Replies

Rapid reduction in ESR & CRP on Pred

Hi All , is this normal my GP was scratching his head with a smile on his face when I walked in his surgery this morning. My last 3 blood tests ESR have been...

Hi All , is this normal my GP was scratching his head with a smile on his face w...

Gaz227

•9 years ago

9 Replies

Dosage of Lansoprazole

For the last two and a half years I have been taking 30 mg Lansoprazole in the morning. I had a laryngoscopy at the voice clinic the other week and was told...

For the last two and a half years I have been taking 30 mg Lansoprazole in the m...

Trenny

•9 years ago

5 Replies

Tapering after a flare

Hi Just asking again for advise after posting a few weeks ago, as all of this is a journey and so grateful for comments from those of you with more experience....

Hi Just asking again for advise after posting a few weeks ago, as all of this is...

Jackoh

•9 years ago

10 Replies

Controlling PMR with OTC meds

Hi Folks, My rheumatologist is leaning towards my condition as PMR. Originally, she thought it was RA but I do not have the swelling in the joints. Also, I...

Hi Folks, My rheumatologist is leaning towards my condition as PMR. Originally...

beccab107

•9 years ago

4 Replies

What am l doing wrong ?

I had some pains in my arms,and shoulders before going for my monthly blood test results ,but could cope with it so thought nothing of it .Seeing my Dr he...

I had some pains in my arms,and shoulders before going for my monthly blood test...

alice1940

•9 years ago

8 Replies

Immunisation with PMR/GCA

I was checking my travel paperwork for my forthcoming holiday to Mexico when I noticed an underlined sentence saying immunise 4 to 6 weeks prior to trip. I had...

I was checking my travel paperwork for my forthcoming holiday to Mexico when I n...

Gaz227

•9 years ago

8 Replies

Back again

As I have been feeing so rough of late with all the normal things that go with pmrgca I have been wondering if I should up my preds to 8 mg for a while....

As I have been feeing so rough of late with all the normal things that go with p...

SherryAnnie

•9 years ago

8 Replies

GCA update

Hi all just a update i have received a reply from the roumy hot clinic it on ly took a fortnight to reply !!! . The consultant sent a letter to my GP...

Hi all just a update i have received a reply from the roumy hot clinic it on ly...

bobless

•9 years ago

7 Replies

Travel insurance and PMR

My son and family live in NZ. It's 3 years now since we returned from our last visit. I would dearly like to return next winter for several months. I was...

My son and family live in NZ. It's 3 years now since we returned from our last v...

Deemar

•9 years ago

14 Replies

Zoledronic acid infusions

Has anyone had an infusion of this kind? My Rheumatologist (who is brilliant) says it only needs to be done once a year. Decades scan showed osteoporosis in...

Has anyone had an infusion of this kind? My Rheumatologist (who is brilliant) s...

Pat9442

•9 years ago

6 Replies

Finally, a human Rheumatologist!

I saw Dr. Hughes for the first time on Tuesday and felt much better for it! He really seems to understand the trials and tribulations of my kind of PMR,the one...

I saw Dr. Hughes for the first time on Tuesday and felt much better for it! He r...

suzy1959

•9 years ago

12 Replies

Post PMR - free at last, even though still on 4mg of pred.

Well no, actually! Certain joints - shoulders, knees and hips playing up like billio. This started when I finally got off 5mg down to 4.5mg. Now on 4mg. I...

Well no, actually! Certain joints - shoulders, knees and hips playing up like b...

pats555

•9 years ago

18 Replies

What time to take medication

I brought this subject up in another conversation on here , as I have said a couple of times this week it's all new to me only being diagnosed just over a week...

I brought this subject up in another conversation on here , as I have said a cou...

Gaz227

•9 years ago

9 Replies

Thanks everyone

Reading the posting I seem to have what everyone is on about, mine started in 2010 full of aches and pains plus so tired all the time my Gp did not know what...

Reading the posting I seem to have what everyone is on about, mine started in 20...

SherryAnnie

•9 years ago

9 Replies

Disability card?

Has anyone gotten a disability card for parking their car? I am hesitant to even approach my doctor about one because am not sure PMR even qualifies. My hips,...

Has anyone gotten a disability card for parking their car? I am hesitant to eve...

PMRpixie

•9 years ago

10 Replies

LDN?

Anyone here have experience with LDN without prednisone? I also have fibromyalgia which reacts violently to pred or anything steroidal (DHEA, licorice, Vitamin...

Anyone here have experience with LDN without prednisone? I also have fibromyalgi...

Julie_R

•9 years ago

5 Replies

Occupational health advice

I'm wondering if any of you wonderful people have had any experience of Occupational health while having PMR. I've got my first appointment next week and was...

I'm wondering if any of you wonderful people have had any experience of Occupati...

margiebell4

•9 years ago

11 Replies

Stomach issue

Have reduced to 10 mg Pred as I wait to see Rheumi mid July. All was 'well' with this and Lansoprazole 30 mg but past week I have developed horrible (although...

Have reduced to 10 mg Pred as I wait to see Rheumi mid July. All was 'well' wit...

mousebear

•9 years ago

9 Replies

Amlodipine

Hi All need to find out what type of BP bills do not affect your kidneys amlodipine do not affect them as far as i know but they change the shape of my legs...

Hi All need to find out what type of BP bills do not affect your kidneys amlodip...

ritter

•9 years ago

10 Replies

Elbow Nodule & tenderness

Dear friends, Good morning to the UK from the states. Seeking some input this am: I've developed a marble-sized nodule on the extensor surface of my elbow. It...

Dear friends, Good morning to the UK from the states. Seeking some input this am...

Zoesquare1

•9 years ago

3 Replies

Illiac Crest pain

Hi everyone.Thank you to all those who share their experiences. I really find it helpful to follow what happens to others as well as comparing results with my...

Hi everyone.Thank you to all those who share their experiences. I really find it...

Chihuahua1

•9 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2015

Pain and swelling in left leg, neck and hips, restricted walking with odema in foot and ankle area.

GCA found in Aorta

PMRGCAuk London Support Group meeting

Tocizilumab

Could pain in hips and legs be due to reduction in pred?

Steroid card

What's going on

Pain Fingers & Toes

Stabbing centre back pain

Rapid reduction in ESR & CRP on Pred

Dosage of Lansoprazole

Tapering after a flare

Controlling PMR with OTC meds

What am l doing wrong ?

Immunisation with PMR/GCA

Back again

GCA update

Travel insurance and PMR

Zoledronic acid infusions

Finally, a human Rheumatologist!

Post PMR - free at last, even though still on 4mg of pred.

What time to take medication

Thanks everyone

Disability card?

LDN?

Occupational health advice

Stomach issue

Amlodipine

Elbow Nodule & tenderness

Illiac Crest pain

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