Anyone here have experience with LDN without prednisone?
I also have fibromyalgia which reacts violently to pred or anything steroidal (DHEA, licorice, Vitamin D even!) and severe osteoporosis.
I've had symptoms for 7 months. Taking 80 mg aspirin (as 40 mg x 2) daily as there is some evidence that it can control GCA outbreak, and I had some minor sx at first (headache, cough) but they are gone or much reduced. Also various alternative Tx. Legs much better, shoulders worse, but that may have to do with too much sitting at first & too much computer recently.
DMARD's don't have much clinical evidence of effectiveness.
LDN has evidence of effectiveness for fibro, especially cases with elevated sed rate (which I have). So maybe I could hit a two-for-one.
Still waiting for my first rheumy appt (rural USA) for definitive dx. This gives me a chance to research before the appt.