Hi all just a update i have received a reply from the roumy hot clinic it on ly took a fortnight to reply !!! . The consultant sent a letter to my GP stating that he felt ESR being only slightly raised AT 33 he felt with the 60 mg pred tapering should show improvement are he could send me to vascular clinic which may take a while so after considering everything i have decided to raid my piggy bank and made a private consultancy with a chap Called DR Chattopadhyay a well renowned in his field and im in the N/W his clinic is at Blackpool i was told about him by the lady who runs the support group in this area . To my mind it appears that a lot of you are having to fight to get a diagnosis and taking high doses of preds and the affects on our bodies is not good without a proper investigation i understand that the clinics are overrun to capacity however i feel that being left in limbo on pure guesswork and hunches without even seeing me is no good so im off to Blackpool and i would like to thank you all for for your information and good advise it has helped me greatly
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