I saw Dr. Hughes for the first time on Tuesday and felt much better for it! He really seems to understand the trials and tribulations of my kind of PMR,the one ,as he said ,that doesn't behave itself. He was so much calmer about the levels of Pred. I am on ,not panicking about how to get them lower. He agreed that ESR and CRP are not really reliable ways of working out what to do. He also agreed that a very slow reduction is necessary as I seem to be so sensitive to any drops. He thought that my
really painful knees are probably a combination of PMR, weakened ligaments and thigh muscles and increased weight and gave me some new exercises to do to strengthen the muscles and, although I had had steroid shots in both 3 weeks ago, he put another shot in the left as it was still quite painful. He did that much more gently than the orthopaedic consultant had done, using masses of local anaesthetic.
He gave me lots of information and supported my thinking, confirming that I am doing all the right things.
I have always seen Rheumatologists privately before but feel that I have had much better service this time on the NHS.
Thank you to Celtic and PMRpro for the useful suggestions! I am feeling much more positive now and ready to deal with what more may come.