Hi. I am new to the group and was wondering if anyone has had a similar diagnosis of GCA. In Jan 2015 I went to GP with consistent burning head pain, left side and back of skull. She noted that I am RA+ (with no clinical symptoms) and immediately suspected GCA. Put me on 80mg Pred and referered me to Rhuemy. CRP was at 35. Pain went in about 3 days. Had Ultra Scan of temples and neck and Temporal Biopsy and that was clear negative. Rhuemy said I did not have GCA. Tapered on Pred and when I got down to 10mg the pain returned. Refered to Neurology and put on Pregabalin had MRI Scan and Neurology gave the all clear, also the Pregabalin did nothing for the pain. Back to Rhuemy (increase the Pred and the pain went) and they Ultra scanned my armpits and did a PET CT scan. GCA detected in my Aorta. Continuing on Pred... Tapering.. And hopefully can get off Pred and maintain on MTX. Has anyone else been diagnosed GCA in Aorta? It baffles me as the symptoms were head pain. Thanks
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