Hi everyone.Thank you to all those who share their experiences. I really find it helpful to follow what happens to others as well as comparing results with my own issues. I have developed a problem with pain along the left illiac crest, radiating into the spine at waist level. The pain is not the same as the pain I was getting when first diagnosed with PMR a few years ago and the latest flare up has been in neck shoulders and head, resulting in an extra diagnosis of GCA. While the high dose of 60mg prednisone is controlling the PMR/GCA very well and I am starting the reducing this week, the pain in the crest is not responding. I have next to no pain when seated, or if I am standing, but leaning over at a 45 degree plus angle at the waist, but as soon as I try to stand upright, or walk more than a few steps, I get horrendous pain, have to stand still and bend forward again to ease it. Has anyone else had this sort of reaction? The doctor doesn't believe it is related to the PMR/GCA. Any input would be most welcome.
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