Hi everyone, all you kind people that have supported me. Been away from the computer, had an awful virus for about three weeks.
The situation with my NHS treatment for suspected GCA is this:
The rheumy wrote very grudgingly (after much persuasion by myself) to the vascular surgeon explaining to him that she does not believe that I have GCA, but please do a biopsy anyway, as I am concerned that I may have. And I had an appt issued for 2nd June. All geared up for that and pre-med went ok, (even with my virus). On Friday, my faith in the NHS went out of the window, as a letter from the vascular surgeon himself arrived at my home. This letter stated that I should attend the biopsy on Sunday the 7th June, and it will be his assistant (student?) actually doing the operation. No mention of the 2nd, and no mention of a cancellation.
I felt so cross, I phoned the admin and told them to cancel the lot! I said it is more dangerous going to hospital than dealing with things myself. I know this was wrong, but I do feel very worried about the conduct of the NHS with regard to myself.
Now the virus is dying, and the pains in the temple are still there, but not excessive, worst in the early hours of course, sometimes causing me to awake.
My vision seems fine, and other than the head pains, I seem fine.
Please do not worry about me.
As you can see I am no further forward, and will now not attend on the 2nd, and feel concerned about Bedford Hospital and their communications issues. I have witnessed a friend dying of myeloma, who struggled with handling their mix up with his appts, and it was very upsetting for him. I know they are very understaffed and overloaded.
My current thinking is, to go to A&E in a different town if symptoms take a bad turn, and I am montoring my eyes constantly to give me time.
Surprisingly, the GP and the rheumy both disagree with you all. I am told to stop researching (I have only used your websites) and to stop worrying. They have not mentioned any other reasons for the pains though, so I believe they think that the aging cervical spine and the spondylosis is the cause.
You are have all been very supportive, and I will certainly let you know how it ends up.
Dave B (Old Bedforian)