Having been on 15mg pred for 6 wks since March 2015 was reduced to 12.5 mg and pain in hips came back with fury. I couldn't wait for Rhuematologist appointment on 2nd June so in desperation went back to GP this morning. Had to see a different one and wow what a breath of fresh air, his knowledge of PMR is very good and reassuring. He put me straight back up to the starting 15mgs and would not be prepared to taper until We are ready and at no more than 1mg at a time. Also suggested I discuss at Rhuemy appt. the need for bone scan to get a starting platform, and bloods booked in. I told him I have discovered this fantastic site and he was fully supportive stating that it is the tried and tested methods for Pred withdrawal that work the best. This of course isn't rocket science but how refreshing to find a Doctor who shares this view with many of you on the foram particularly PMRpro. So grateful to everyone who takes the time to write and share experiences. What I think I am trying to say is if you don't feel you are getting the help and support you need from your usual GP try another one and mention the many sufferers on this site who are living, struggling and dealing with this disease. As we all know, we don't fit into little boxes, our symptoms need individual management. As a PMR sufferer I feel so much better and more positive today just taking more control with a Dr who respects, listens and acts. The more information you can get the stronger you will feel. Good luck to you all on your PMR journey don't let it beat you and share your fears. There are so many lovely people on here to help, as I have been.
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