I am so pleased I joined this forum after reading about it in Kate Gilbert’s book. I read the posts daily and follow everyone’s journey with interest and empathy. I’ve learned so much and feel I have a better understanding and depth of knowledge about PMR/GCA than I had when I was officially diagnosed back in March. Of course each person’s journey is unique and there is still so much I have to learn about my own body’s reaction to PMR and response to Prednisone. I now know from personal experience how stress is very definitely a trigger for a flare of symptoms which, for me, have been under control (no stiffness & pain free) since beginning treatment. I tapered down to 12.5 mg 2 weeks ago and everything was ok until my car broke down a few days ago and I was left stranded. After a lot of stress and cell phone calls I was finally ‘rescued’ but was without transport for a few days. I had to walk to work (not far but an uphill walk) and needless to say the weather decided to turn cold and wet. Work also turned out to be stressful and yesterday I started to feel pain in my hips etc. which I thought might be due to the extra exercise of walking to work. But today the rest of my body has started to ache a bit more so I think it’s a flare. I should have taken heed of the posts I’d read about increasing the Prednisone when undergoing stress but thought maybe it’s too late AFTER the event and I wouldn’t have known how much to increase it by and for how long. At least I know it’s a flare and not a response to the tapering 2 weeks ago. I’m going to put it down to valuable experience, learn to take heed of my body and not to be a martyr. Hopefully the flare will settle on its own if it’s too late to increase the Pred especially as I think it’s a minor one.
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