So fed up with this illness! Not sure what to do now? I have been trying to reduce from 20mg of pred and am also on 1000mg of mycophenalate twice a day. When I got to 17.5 the hips and shoulders started up again, not as bad but noticeable. I tried to carry on reducing by 1mg of pred every couple of weeks and got down to 13mg but it just became too uncomfortable. Now back up to 15mg of pred and had two or 3 days where I felt almost normal. I have maintained the mycophenelate all the time and have been on it for about 5 months now. However things are not so good now and I'm not sure what to do. I have been down this route before and at 17.5 mg of pred had to go back to 20mg. I am still working half days only, and have been for about 3 months but I am struggling with this. Just so fed up with not being able to reduce the preds and still being in constant pain. off on holiday next week so can have a complete rest but worried that my disability will affect my wife's enjoyment and limit what we can do. think I will give the rheumy a call when I'm back from holiday as I'm not sure the mycophenelate is actually doing anything. I have also tried methotrexate and azathriaprine, the first did nothing the second made me extremely ill!
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