Hair loss

[cassey1879]

Can anyone recommend something to help with loss of hair from the large doses of prednisone. I am taking 1200 mg of Biotin which I think helps, just wondering if anyone over there knows of anything else, foods? Topical stuff, shampoo or anything?

[PMRpro Ambassador]

I think the usual things like not having too long a hair cut and using gentle shampoo may help as well as not colouring or perming. A good hairdresser is a must. But don't worry too much - it will return to normal as the dose falls - mine was horrible and frizzy for a while and didn't seem to grow at all. It is now back to normal, long and shiny and curly rather than frizzy. I know how you must be feeling though - the only thing I have a "thing" about is my hair! Not a make-up. shoes or clothes girl at all - but if my hair is bad, I feel bad!

[55grove]

Yes my hair was terrible and for aa woman that makes you feel awful. It was falling out and frizzy. I found a good shampoo helped...expensive but so worth it. Now I am on one milligram the volume has come back and waiting for regrowth on the baldy patches. My hairdresser exclaimed how much better it is. I had it cut very very short while it was in a bad way, but now on a lengthening programme...I look more like myself again. Don't worry. Just concentrate on getting those Preds down very very slowly. All the best....

[Rjw2014]

Yes, one of the more upsetting things about this horrible PMR/GCA business. I look at the bottom of the shower and despair sometimes. I always has very thick hair, now you can see my scalp through it. My eyelashes have gone too, though that I think is more to do with the sore eyes which are due to the bispropolol I take too! Ah well, I'm just hoping for better things as the dose drops!

[PMRpro Ambassador in reply to Rjw2014]

It's my husband who despairs at the shower getting bunged up - I can't clear it out as I can't kneel to get at it and sitting on a low stool and leaning forwards is a PMR no-no! By the way, I also rarely wash my hair. After a hairdresser visit I can go 3 weeks - but I do live up a mountain with a lot of very clean air and (usually) not a lot of wind.

The sore eyes may not be the bisoprolol - it could be part of the autoimmune part of PMR, mine was. Perversely, it's actually improved since being on bisoprolol! I also now have long and VERY thick upper lashes, the lower ones are not perfect but so much better.

It does get better!!!!

[Jora]

I think it helps not to wash the hair too often. I used to do it every few days. Now, I only do it once a week. I use a shampoo with caffeine, and a cold using conditioner. Argan oil nourishes well and controls the frizz. Jora

[30048]

My daughter marched me out and we bought a wig. It was fun ...they are not that expensive and it did the trick . When my hair grew back in...it came in curly for the first time in my life.

[piglette]

My hair is just awful, I have tried everything including argan oil. Of course it may be even worse if I stopped trying everything that might improve my hair.