29th April 2015
This morning, I went to GP to ask for Biopsy, as the rheumatologist asked me to, and dictated the letter to her in my presence saying this. This letter gave the instruction, that I should have a biopsy as soon as possible as I was on no prednisolone at all.
As I had heard nothing after four weeks or so, I went to see her. During the conversation, I discussed the two documents that PMRpro has advised me to read and had with me, these the one by 'Quick' and this one:
She told me, strongly, told not to read them, as a little knowledge is not a good thing.
I explained the following: If we take the symptoms listed in the documents, and the biopsy shows positive, then the positivity is >90%.
I explained that I have had claudication of the jaw and of the tongue preceding the onset pain in the TA, and that I had none at the moment.
I also mentioned, that I had no scalp pain at present, having experienced that prior to the onset of the temporal acute pain.
She asked what is the level of the pain at the moment, and I replied about 25 to 50% of the pain level at inital onset, which was acute and totally unbearable.
She asked what I wanted her to do, and I replied: 'get the biopsy arranged asap'.
She then stated that, from what I have said to her, there will not be any point in doing a biopsy as there won't be any GCA in the artery. Come back when the pain is greater. I then left.
She had the rheumy's letter on her display, I noticed.
She has never looked at my temple area, and I am sure I can see swelling on a blood vessel visible there. it is the one that runs fairly horizontally towards the eye from the temple. She has not felt for the strength of the pulse either.
Am I worrying too much, probably as she thinks so, but, I must agree, ''A little knowledge is not a good thing!!!!!!!!!!!!!!!' By definition, GP's must have a little knowledge about all medical matters, but not a lot about any one of them.....otherwise they would not be GP's. (ooops what have I said)
But what do I do now? I took an aspirin to try and reduce the level of pain, but could feel no difference in the pain level afterwards (four hours ago).