3 1/2 years ago when I lost the sight of my right eye to GCA I asked my GP to refer me to a Rheumatologist. He said there was at least a 3 month waiting so I asked to be referred to one privately. I saw the Consultant privately for 2 years, and when he thought I was stable and recovering well he suggested to my GP that I be referred to an NHS Rheumy. My GP didn't think this was necessary and said it could be managed within the practice. Big joke when I asked how often I should see him he said only if I thought there was a crises. GP now retired and went to see new GP 3 weeks ago when I had a relapse. He admitted that his knowledge of GCA is limited, and when I suggested that perhaps I should be referred to a Rheumatologist, he said it wasn't necessary as there was nothing he could do that the practice couldn't. Told me to return in 6 months. I am not sure what my next move should be. I feel very reluctant to be referred privately again, and I can't go to another doctor, as the one I saw is head of practice, and holds the purse strings. Suggestions would be very welcome. I was on 20 mg at relapse 3 weeks ago, reduced to 15 mg after a week, tried 10 the 3rd week, but had to go up to 12 1/2. Feel ok now so will try another 2 1/2 next week.
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