My good news story: Hello, I acknowledge that I... - PMRGCAuk

PMRGCAuk

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My good news story

LucPaul profile image
8 Replies

Hello,

I acknowledge that I have not been one to post here, but I did take the advice offered and am so grateful for it all. After being diagnosed with PMR following a covid shot and then a bout of covid I found this site. Your (all) advice felt right and I latched on to the DSNS approach. Did I struggle? Yes. Did I feel a little lost in confusion? Yes. But I tapered on, splitting 1mg tabs and ignoring some of the advice of the rheumatologist in order to stick to the plan. Interesting that the goal was the same, but the method was gentler. I worked down to 1mg, then split the tabs into quarters (lucky the new prescription tab sizes were larger than before). I kept at the DSNS all the way to 1/4 tab on six days off. Would my body take over?? Let's find out. I put the remainder of the Pred. in the hall cabinet and began a slow exercise routine to WAKE UP the adrenals. That was March 21st, not quite a month ago. Pred. free : )

I struggled at the end not due to pain, but energy. It feels like my adrenals are slow to activate and I often have low energy and no motivation. That's okay with me if I can stick to the new plan I just now thought of DSNS EXERCISE ROUTINE for after Prednisone recovery. The gentle approach got me here, the gentle approach can get me on to feeling strong again. I'm going to print another calendar just like the one I used for tapering and tuck it back in with my morning vitamins to taper UP the exercises for the day. Hang on adrenals help's on the way. 1 / 6, 1 / 5, 1 / 4. . .

Thank you for all the good advice It worked beautifully

LucPaul

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LucPaul
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8 Replies
PMRpro profile image
PMRproAmbassador

Thankyou for that vote of confidence - and fingers crossed this is the beginning of the final stage. All the best.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good luck..

Sophiestree profile image
Sophiestree

Great post

Artandpoetry profile image
Artandpoetry

Good news stories are always great to hear. 👏

Bcol profile image
Bcol

Good luck and I hope all continues well.

Angelsmummy profile image
Angelsmummy

Goodfor you L,a lovely success story,which gives us all hope.Look after yourself and nice that you shared it with us all on here.xxx👍🌷😜

Leafsong66 profile image
Leafsong66

Thanks for the positive news. All the best. Would love to hear further details of the gentle exercise plan to wake up Adrenals.

LucPaul profile image
LucPaul in reply toLeafsong66

Hello, I just found this today. If I was to suggest a good way to regain vitality when there is not much motivation, (like me) this is a good place to hang out. Johns Hopkins is a well respected institution.

hopkinsmedicine.org/office-...

I was a licensed massage therapist for many years and from what I have seen today this looks good. As a primer for the body before attempting more vigorous exercise it seems ideal. Plus it is really nice to have small duration, well described movements on video. These can be built upon as one is ready. I'm going to try these and you might want to take a look.

good luck

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