5 week taper: Hi, I was thinking about when I... - PMRGCAuk

PMRGCAuk

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5 week taper

Groggrim profile image
16 Replies

Hi, I was thinking about when I return to tapering with Dorset Lady's 5 week taper. I'm not sure which would be more effective, to reduce 0.5mg every 5 weeks or 0.25mg every 5 weeks. I am currently @ 7mg and understand about going slower as you get lower.

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Groggrim profile image
Groggrim
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16 Replies
piglette profile image
piglette

I would have thought that 0.5mg drop should be fine at 7mg area. It is when you get lower you may need a smaller amount, but a lot of people never go lower than 0.5mg and some don’t go below 1.0 mg even. Best of luck.

Groggrim profile image
Groggrim in reply topiglette

Thank you piglette, makes perfect sense. 0.5 to start, reducing to 0.25 as I get lower. I want it to work this time, I haven't had much success since 7mg.

PMRpro profile image
PMRproAmbassador in reply toGroggrim

But it isn't necessarily the taper that is the problem - it is just as likely you are at your lowest effective dose and you won't get below that whatever the taper.

Groggrim profile image
Groggrim in reply toPMRpro

Do you really think so? 😒

PMRpro profile image
PMRproAmbassador in reply toGroggrim

Your history really does suggest that. It doesn't mean you won't get lower, just not yet and given the timescale, 7mg is actually not bad at all. If you try to force it, you will just get in a tangle again - that is what has been your problem before.

Groggrim profile image
Groggrim in reply toPMRpro

Thank you for your wisdom and plain speaking and also your patience. I have been trying to please everyone, the GP, my endo, my family, my late mother, even other forum members for some peculiar reasoning hidden in my psyche. Leave this with me, it has given me something to think about. Thank you.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGroggrim

Stop trying to please everyone and everything - except your PMR that is...😏

Stay put for now, on current dose..and reevaluate in a month or so - when other things in your life have return to status quo.. and I don't mean the band for us old R&R fans!

Groggrim profile image
Groggrim in reply toDorsetLady

Typed a reply and lost it 🙄Thank you x

Charlie1boy profile image
Charlie1boy in reply toGroggrim

Yes, it’s only your PMR you need to please! PMR is the boss.

Groggrim profile image
Groggrim in reply toCharlie1boy

Thanks Charlie, I think I've had the wrong mindset and approach. I'm a slow learner

Charlie1boy profile image
Charlie1boy in reply toGroggrim

You are getting there.

Groggrim profile image
Groggrim in reply toCharlie1boy

I'm getting somewhere but I think I'm taking the long way round 😄

Charlie1boy profile image
Charlie1boy in reply toGroggrim

Slowly slowly catchee monkey! No harm in the long way round!

Bcol profile image
Bcol

0,5mg every five weeks worked for me, but I have to agree with PMRpro's thoughts about this.

Groggrim profile image
Groggrim in reply toBcol

I know Bcol, she knows me and I trust her, as well as DLady. I'm still fighting it, it's a mental thing rooted in my upbringing, seeking attention and affirmation back in the classroom aged 6, in order to function.

Kingcharlesdog profile image
Kingcharlesdog

Hi I personally think you have done very well to get to where you are in the timescale. I was diagnosed in March 2024 and I am on a slow taper . Now down to 5.5 mg . It is frustrating as I can’t do what I used to do but I am learning to be selective about my activities.

Keep your spirits up x

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