how often do you have flares?

[CeeCee101]

I just got over a pretty bad flare—fatigue (walking through jello), itching, bone and joint pain. Had labs, nothing major elevated but then we all know labs don’t always correspond to symptoms. Just wondering how often you all get these flares? I have been trying to keep track on the PBC app but sometimes I forget to do it. My average seems to be every 3 months. This last one was NASTY, one of the worst I have had. Comments?

[butterflyEi]

I am usually pretty even so long as I remember to take my medication. When I go off my diet and have "treats", usually when visitors come, is when my symptoms are worse. Just recently invited to dinner succulent steak and homemade cremebrulee for sweet, I was not well afterwards but I thoroughly enjoyed all those flavours.

[tamarjaybird]

I can't say I've noticed any particular pattern but I do know it flares up big time if I get stressed. I've had ME for 25 years which has similar symptoms so I have had plenty of practice in managing the symptons.

[pbcgirl]

I was relieved to hear you say every three months. That is roughly the time between my flare ups. The fatigue is the worst for me. I just can’t function and if I do anything I feel as if my body is fighting to get oxygen so that my cells can work (if that makes sense). Unfortunately I have a boss that doesn’t understand the disease and thinks I just want time off. That is one of my biggest frustrations.

[Nellies47]

HI.

Its interesting that you talk of flares. I have constant fatigue, but have flares of joint and muscle pain at least 1 a month.

I have autoimmune inflammatory arthritis so i presumed it was that. But then my crp is higher when joint pain.

I dont think i fully understand this disease process.

Sorry your having these problems.

[Hidden]

I noticed I'll have a 2 to 3 week or so flare followed by maybe 10 day to 2 week "quiet" time