Job

[Purdy2017]

Hi has anyone reasontly given up there job due to fatigue I want to makes me fill like I'm losing my independence and once I've done it theres no turning back but I no it will be better for me I'm such in a crossroads it's getting me down has anyone else gone through this help x

[Hidden]

Hi Purdy2017I gave up work 3 years ago, I had to , I just couldn’t keep it going but it affected my mental well-being. I took a job in a supermarket last September, only 12 hours a week (3*4hour shifts), sitting at checkout , and it made all the difference to me mentally. I had worked since I left school just before I turned 16 and only had a short break when I had my daughter, she was 9weeks old when I went back to work. It does come with its struggles, I have to pop my anti nausea tablets before and during a shift, pain killers and I usually go to bed after my shift but I’m happier .

At moment though I am shielding and it’s driving me mental, work won’t let me back until government advises.

So if you can give it up, then do so, can you reduce hours??

[Purdy2017 in reply to Hidden]

Hi angel thankyou for your reply yes my husband is disabled and gets personal independence payment so I could be his carer and get are rent and poll tax paid so we should be able no it's not beneficial as we would loose to much money x

[kimphoebe]

Hi there,

I gave up about 3 years ago after being on sick leave for 2 years in that time tried doing part time but still struggled. It’s was a big decision one I never thought I would have to make. Still to this day find it hard to have lost my independence. But on the other side I can sleep and rest when I want and see my friends more which I couldn’t do while working because I was so exhausted all the time. I do claim Esa and pip now which helps. Xx

[Purdy2017 in reply to kimphoebe]

Thankyou for your reply yes I agree I'm getting worn out just doing wot I have to do at home that's enough for me I've been signed of sick for a month but I dont intend to go back I agree with e6you have said x

[Nellies47]

Hi.

I'm going through this at work too, I'm working a 4 day week as a nurse and just exhausted all the time, no quality of life at all.

Have requested shorted working week and waiting to see if I get it.

I just feel there has to be more to life than this. I'm diagnosised since Dec 20, but have fatigue for about 3 years.

Best of luck with your decision.

Nelly

[Purdy2017 in reply to Nellies47]

Hi yes I no its horrible by the time you come home theres nothing left it's just an existence life is to shoot I no I cant carry on I just cant do it anymore I dose not matter how much or how little I do once 2,00 comes I'm completely done good luck with your hours look after yourself x

[Chumito]

Just this morning I woke up crying as I thought about that. Now I read you and realize it’s real!!! I’m afraid to go back to work. My nausea is horrible! And the fatigue!!! It’s nice to read you and know someone can relate.

[Purdy2017 in reply to Chumito]

Hi it's all I have been thinking about for the last 6 months I went sick for 2 months went back to work but just fill rotten again I can only cope with wot I'm doing at home it does not matter how little or how much I do come 2.00 I'm worn out x

[YvonneGS]

My husband had to go on disability due to PBC in 2017. It has been really hard on him mentally, but he had no choice. The fatigue and brain fog made it impossible to continue working. He has adjusted and appreciates the fact that he can rest throughout the day as needed. Any little thing he tries to do wipes him out, so life is certainly limited. That being said, we try to count our blessings and enjoy this unexpectedly early ‘retirement’ as best we can. Certainly not what we had planned, but at least we are both here together, have a home, food, etc. and see our kids when able . Being able to stay at home has taken the stress out of trying to force himself to do things that he just can’t do anymore. Tradeoffs, I guess. If you can make ends meet, do what you have to do for your body and explore some new avenues to stay mentally and physically active to whatever degree you can. Wishing you the best on your journey.

[Purdy2017 in reply to YvonneGS]

Hi thankyou for your reply yes its horrible its along going battle it seems no matter how little or how much I do come 2.00 I'm done in I have to push myself at home to get jobs done so when I'm at work its awfull even as hard as the decision is I will be staying at home wot energy I have I owe it to my self like you say as long as I've got roof over my head food on the table and look after myself wot more do you need I wish you both well x

[YvonneGS in reply to Purdy2017]

It is a tough journey. I pray for you and all PBC patients and caregivers...hang in there. And reach out to this group and the Facebook groups when you need some encouragement! It helps to have the listening ear of someone who knows what you are experiencing. Big hugs!

[Purdy2017 in reply to YvonneGS]

Thankyou your very kind x