I am a 38 year old wife and mother of 3 that has been recently diagnosed with PBC after abnormal LFT's over the course of 1.5 years.
In Nov.2017 ALP 218/ALT 64/AST 40.
May 2019 ALP 338/ALT 104/AST 75.
Hepatologist performed a Fibroscan - result was 5.2. I was told we caught this quite early and most likely do not have any damage to my liver yet. He suspected I may have had it for 2-3 years. I have been prescribed 750mg URSO once daily and told I require blood tests every 3 months. I will have a follow up appointment with the hepatologist in one year to see how everything is going.
To say my world has turned upside down would be an understatement. When I was diagnosed 2 weeks ago I was shocked and lost for words. Now I have many questions and am terrified as to what my future may hold. I found this site and am hoping to gain some understanding and some answers from people who have been living with this disease. There is a lot of contradictory information on the internet and I find it's easy to get lost in it all.
Some of my worries and questions are:
How long does URSO take to start showing results?
Will I be able to see any change in my LFT results at my 3 month blood test?
With my LFT results - what do the result numbers look like when liver damage starts?
I have a very active life involving family, friends and sports which tends to include social drinking. I've never been a big drinker but do like to have a few drinks on the weekends. Do I need to stop drinking alcohol completely?
Life expectancy - how long have people been living with their diagnosis?
I feel as though I am somewhat asymptomatic - I have sporadic little pains in the right side of my abdomen, itch here and there but nothing crazy, fatigue but I am an extremely busy woman. This is all playing head games with me now - it this normal or is this the disease?
Is it best to avoid headache/pain reliever medication or cold/flu medication now? I've never been a pill popper for headaches or aches and pains and such anyway but am wondering.
Please share any experiences and insight you all may have.