Hi has anyone ever had a flare from anger and stress...I ask because even though I thought something was coming on because I have worked back to back shifts on the spice girls tour and am exhausted. However, this morning things got a little off with travel arrangements and accommodation...I was so angry and stressed because of the situation. This afternoon, I feel so unwell...nausea, extreme fatigue, painful joints, pain in liver area and right across the front of my abdomen towards pancreas....headache, the usual symptoms..
I don't have jaundice as yet and hope not. But feel so unwell, can't get warm
I have agreed to a liver biopsy but waiting for consultant to arrange...
Just not well and this keeps happening...any advice please. Thanks xx
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Alley27
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I wish I could tell you something you don't already know. What you wrote tho sounds like me, too. Yes, stress and getting upset makes me feel worse. All I can say is try not to overdo it and Once we get wore down, we start feeling worse then our usual. Just reading what is going on with you makes me more tired. Praying you can do what you do. My daughters grew up on listening to "The Spice Girls" and would've loved to do whatever you do.
I had a biopsy in 2013 but my hep wants me to get another but I convinced him to wait
Hi Alley27
Sorry cannot give any advice but hope you feel slightly better today!
Yes!!!! Stress, fatigue and anxiety all prompt the release of stress hormones like cortisol which kickstart the immune system. In our case, this could cause an even larger attack on the liver, joints, etc. Learning to "guard our peace" is essential for the management of this disease.
Good Morning....Hoping today finds you feeling a little more centered. I like routine in most things I do. When that apple cart gets tossed, I often times have to really breathe and remember that I am not in control. When stress and anxiety rear their ugly heads in my life, it usually leads to over thinking which in turn leads to my self care being neglected. I'll either over eat, usually things I know are not good for me, or not eat and hydrate, which is equally as bad. My sleep patterns become a rumor too. Most recently I have noticed that when I'm allowing stress and anxiety to rule the moment, that although the house becomes "tweeter clean", I also forget to take my supplements. So for me, meditation, pausing, giving it to something bigger than me, and routine yoga practice help as an insurance against those times. I must say that the time spent in distress has shortened, as has the frequency. The hardest part is to chill out when anticipating results from tests, but this too is out of my control. Your job sounds amazing and demanding all wrapped up into one. You are fortunate to be able to continue to do what you love. Hope you find some extra peace today. Be well
mrspeffer...wish I lived close to you. You always have such a healthy and positive outlook, which is what we all need. Your words are truly an inspiration to us all. 😊
That is so very sweet of you to say. It would be a pleasure to stop in for a cup of joe with you and hours of sharing. I'm blessed to have you as a friend
Absolutely, happens too much and I think that 2 traumatic events in my life led to my PBC and later AIH. Stress takes more years off a person’s life than anything. Do your best to stay calm and don’t sweat the Small stuff.
Since being diagnosed last November I have found that I must make my health a priority .This has meant a lot of change for me because of the joint/muscle pain and sometimes overwhelming fatigue.I find the harder I push the worse I feel .....and of course the fatigue makes you even more anxious to get things done .I am learning slowly to make changes .....I have pushed the envelope my entire life and am feeling the need for a different ,more powerful less physical direction .....Take good care of yourself xxxx
Hi just read your post I am a 60 yr old male with pbc which I’ve had for three year , I get similar feelings as you feel unwell best thing I’ve found is have a nice warm bath helps me a lot and try and get some extra sleep as u seem to have been over doing things at work iam sure the spice girls will understand your predicament so take it easy for a bit and build your strength back up again regards Steve
I suspect that this is true but have not had a doctor verify it. Last late summer/early fall I had a problem with my sewer line. I kept calling people to help : my insurance company, three different plumbers, my town sewer department, the town public works department. No one could locate the problem. No one could even tell me exactly where the pipe ran. I’m getting tense just remembering my frustration. Meanwhile, raw sewage was seeping into my basement. 6 weeks later when the problem was finally fixed I went for blood work and my liver functions had skyrocketed from slightly above normal where it has been for years to the 400 range. I had no changes of medicine, no change in diet. My blood sugar was also out of control with no changes in my behavior. The only thing different was my frustration and stress. They started checking my numbers again every month, then three months and with no changes again, I’m back to normal
again. No one can explain it to me so i am convinced that it was the extreme stress.
Hi Alley, I remember that you were awarded a right to a benefit that applies to people not fit for work at all, so would it be true to say it wasn't enough money for your needs? I remember too that you have said that you love your job? Would it help you to look closely at what it is exactly you like about it? And what you don't like about it? From memory, your work involves event security. I have read that working conditions are scandalous to the point of lawbreaking by employers, that young and fit people struggle to do this damaging-to-their-health work. I wonder if you can decide exactly what you want in a job, and what is a sustainable or safe amount for you to give in return for your pay. It sounds like your employment is way out of balance against you in favour of your employer with long erratic shifts, poor travel and accommodation, inadequate comfort breaks and no chance to eat or drink in the way anyone needs to, even a healthy person. Don't be at breaking point over and over, this is your life and your choice. That's my advice, decide if your health is worth more than this job allows it. Best wishes
Thank you so mu6for this..and yes my life and my health are worth so much more than this job...I refused to work this weekend and don't think I am going back...I need to have an in depth chat with my family and my partner and decide next steps. If they care for me and love me then my best interests should be at heart. I love my job...I am really good at what I do and I am quite fond of the money it gives me a normal existence, benefit are not for me it's not enough to live on...but perhaps there are other benefits I could try to claim, plus I don't like being a burden to the state or my family...
Hi everyone and thank you all so m8ch for your posts. I had the liver biopsy done last Tuesday...unsuccessful though had to stop him because I felt it ....the lignocaiin anaesthetic does not work on me.....I also have stress fractures on the rib due to injury at work...So the pain from both, not ideal...
I feel a lot better for the rest I have had off work but I am back to work on Thursday...London and Brighton, London and home so a lot of travel. I honestly don't feel that I can keep this up...but don't know how to tell my boss. I know if I work that it will knock me out...but what can I do when people don't understand....I guess it will all sort out....thanks again x
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