Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for March 2019

Diet

Recently been diagnosed with pbc and generally have a good diet but would like some advice on what to avoid I keep an eye on my sugar intake I heard white...

Recently been diagnosed with pbc and generally have a good diet but would like s...

S2k0

•5 years ago

17 Replies

Diet

Recently diagnosed with pbc my diet is generally good. Don't eat much bread I have read white bread is a no what about wholegrain and seeded breads. I am more...

Recently diagnosed with pbc my diet is generally good. Don't eat much bread I ha...

S2k0

•5 years ago

1 Reply

Had two liver scans within 2 years. First one 0.1. Second 11. Should I be worried? Or could something be slightly off.

Liver scan Results

Jen11804

•5 years ago

15 Replies

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Itchy little bumps on skin

Does anyone get itchy little bumps on your skin with PBC? I have odd clusters of these little bumps that can be a little itchy and don’t know if it’s just...

Does anyone get itchy little bumps on your skin with PBC? I have odd clusters of...

Wocket

•5 years ago

12 Replies

Cold!

Hi does anyone else suffering with PBC have any issues with staying warm at different times? I’m either melting or so cold my feet and ankles are icy cold.

Hi does anyone else suffering with PBC have any issues with staying warm at diff...

P13jne

•5 years ago

22 Replies

Anxiety

Hi there, I've been suffering from anxiety of late. In looking for help with this I came across Lavender Kalms. I thought I would give these a try and so...

Hi there, I've been suffering from anxiety of late. In looking for help with t...

Milo2

•5 years ago

16 Replies

Blood test information needed

Doctor told tests of complete CBC, ESR, ALT and CREATININE in serum and MRI of knee which will be available later. I am having left knee joint problem started...

Doctor told tests of complete CBC, ESR, ALT and CREATININE in serum and MRI of k...

hassa

•5 years ago

2 Replies

Advice needed please

Please could anyone advise on a really good Consultant for Endometriosis? I am in the UK, Midlands area but would be willing to travel for the right one. Many...

Please could anyone advise on a really good Consultant for Endometriosis? I am i...

Caroline-12

•5 years ago

2 Replies

Getting too thin

Hi there Has anyone experienced weight loss from pbc stage 3.?I feel as if I can’t keep weight on my bones and would be more comfortable a few pounds...

Hi there Has anyone experienced weight loss from pbc stage 3.?I feel as if I can...

Vivaldii

•5 years ago

10 Replies

PBC app

Hi i have just installed the new pbc app and my pbc app refuses to recognise my sign in details..what should I do to rectify this please. I have been sent a...

Hi i have just installed the new pbc app and my pbc app refuses to recognise my ...

Vespa27

•5 years ago

6 Replies

Health/work capability assessment tomorrow.

Hi guys, a few weeks ago I was ordered to have this assessment by my work coach.. Its tomorrow. I will go however, I am unwell, I have been in bed for 2 days...

Hi guys, a few weeks ago I was ordered to have this assessment by my work coach...

Vespa27

•5 years ago

5 Replies

Low thyroid

Has anyone eles have this since being diagnosis.

My-life

•5 years ago

16 Replies

Travel insurance

I need travel insurance but have PBC osteoporosis and had a triple bypass and the aortic valve replaced. I realise it’s a bit of a list but Can anyone help...

I need travel insurance but have PBC osteoporosis and had a triple bypass and th...

Philippastcarin

•5 years ago

7 Replies

Itching

Hi everyone, Just had my follow up appointment with my consultant after my liver biopsy confirmed PBC. I mentioned that the “itch” is driving me insane. She...

Hi everyone, Just had my follow up appointment with my consultant after my liver...

P13jne

•5 years ago

2 Replies

Ocaliva

So im writing this, in hopes of finding a solution. My mother is currently battling a liver condition and she is taking Ocaliva. but inside the US, its a...

So im writing this, in hopes of finding a solution. My mother is currently battl...

RobertCJ

•5 years ago

4 Replies

Well....... Now what?

Pre\\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35....

Pre\\OCA. ON OCA FEB. 8. MAR 11 Ast...18. ...

Ktltel

•5 years ago

36 Replies

Low Dose Naltrexone anyone?

Hi, I was just wondering if anyone has tried Low Dose Naltrexone for PBC? there are so many clinical trials happening for all sorts of autoimmune diseases with...

Hi, I was just wondering if anyone has tried Low Dose Naltrexone for PBC? there ...

KiwiPBC

•5 years ago

39 Replies

Mri results and official diagnosis

So I got my mri results and official diagnosis of PBC. Alp ast alt elevated/ positive for ama like really positive . MRI showed tiny benign tumor on liver....

So I got my mri results and official diagnosis of PBC. Alp ast alt elevated/ po...

tnchikadee

•5 years ago

9 Replies

Chicken pox and auto immune disease?

Hi all. My son has woken up with a few spots and I'm obviously concerned it is chicken pox. Though I don't think this IS on this occasion (though I'll be...

Hi all. My son has woken up with a few spots and I'm obviously concerned it is ...

Mariontp

•5 years ago

2 Replies

AMA result

Dear friends, I am very new to this forum. I have no symptoms and the high ALP was accidentally detected at my routine annual blood work. Last week I checked...

Dear friends, I am very new to this forum. I have no symptoms and the high ALP w...

HAAS

•5 years ago

8 Replies

Alp/GGT

Hi everyone . I am scheduled to see doc on monday to go over my abnormal labs ,ct scan I just did today, which I cried all the way through, and to start meds I...

Hi everyone . I am scheduled to see doc on monday to go over my abnormal labs ,c...

tnchikadee

•5 years ago

6 Replies

Itch scratch itch more

Guys this itch is driving me crazy I don't know how much longer I can carry on. GI has given me Questan and Rifampicin but more meds, more side effects. Years...

Guys this itch is driving me crazy I don't know how much longer I can carry on. ...

Carrickgal

•5 years ago

15 Replies

New

I was worked up for PBC a year ago. Had inconclusive results with Gastroenterologist but my Primary care md is concerned for high alkaline phosphotase (6 times...

I was worked up for PBC a year ago. Had inconclusive results with Gastroenterolo...

Candicelynnc

•5 years ago

10 Replies

Antibiotics and blood test

Hello friends, I am with urso since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes...

Hello friends, I am with urso since my diagnosis 2 years ago ,have my blood test...

Germania

•5 years ago

11 Replies

New to this site

Hi, it has been six years ago since my GP referred me to the hospital as I had raised ALP. I have since had 2 scans, 2 MRI, s, dozens of blood tests and a...

Hi, it has been six years ago since my GP referred me to the hospital as I had r...

Spanishnan

•5 years ago

3 Replies

PBC and itching question

Can a person have itching with very early disease or does it come in later stages only?

Can a person have itching with very early disease or does it come in later stage...

VeeWat

•5 years ago

3 Replies

Positive AMA 2 years ago no PBC symptoms

Hi Everyone, I am 31 years old. I did that test 2 years ago by accident, it was randomly checked. I repeated the test and still positive, My LF was normal,...

Hi Everyone, I am 31 years old. I did that test 2 years ago by accident, it wa...

ELOE

•5 years ago

8 Replies

NyQuil & possible PBC

Hi - I am being monitored on suspicion of PBC. My ALP 8 weeks ago was 160, was just retested today and awaiting results. Over the past 8 weeks I’ve avoided...

Hi - I am being monitored on suspicion of PBC. My ALP 8 weeks ago was 160, was j...

Pamcakes718

•5 years ago

12 Replies

Pain

I would like to know if pain I get on my side, front, or back is from the PBC? Sometimes it’s very sharp almost feels like a UTI.

I would like to know if pain I get on my side, front, or back is from the PBC? S...

Scrapbooking2019

•5 years ago

4 Replies

Hi, I’m 53 and newly diagnosed after liver biopsy in January, consultant appointment next week, what questions should I Be asking?

PBC

P13jne

•5 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2019

Diet

Diet

Had two liver scans within 2 years. First one 0.1. Second 11. Should I be worried? Or could something be slightly off.

Itchy little bumps on skin

Cold!

Anxiety

Blood test information needed

Advice needed please

Getting too thin

PBC app

Health/work capability assessment tomorrow.

Low thyroid

Travel insurance

Itching

Ocaliva

Well....... Now what?

Low Dose Naltrexone anyone?

Mri results and official diagnosis

Chicken pox and auto immune disease?

AMA result

Alp/GGT

Itch scratch itch more

New

Antibiotics and blood test

New to this site

PBC and itching question

Positive AMA 2 years ago no PBC symptoms

NyQuil & possible PBC

Pain

Hi, I’m 53 and newly diagnosed after liver biopsy in January, consultant appointment next week, what questions should I Be asking?

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