Low thyroid

[My-life]

Has anyone eles have this since being diagnosis.

[gwillistexas]

My-life...I’ve had thyroid issues for many years, since late teens. (I’m 64). It has been a little harder since diagnosis to keep levels in check. But, having said that, I take only Ocaliva & it is stated in drug facts it can have negative impact on thyroid levels. 😊

[My-life in reply to gwillistexas]

Thank you. I never had proublems till now. Blessings.

[gwillistexas in reply to My-life]

My-life... you’re welcome. Hopefully your dr can get you balanced. It’s awful to be low. Mine goes hypo to hyper. Neither is pleasant 😁

[My-life in reply to gwillistexas]

Oh how I love my doctors. Lol

[My-life in reply to gwillistexas]

Oh how I love my doctors. Lol

[EileenUSA]

i had total thyroidectomy in 2010. Got on levothyroxine and was stable for 6 years ( stable meaning same dosage amount and consistently similar TSH blood labs) Then dx'd with PBC and started URSO.

Since then it's been constant changing Med level and going from hypo to hyper. Ugh. right now my labs show thyroid in "normal" range BUT the lab level range for " normal" is so wide that I'm still not feeling great- I mean I have read that "how" the patient feels is equally important to TSH labs... anyway no easy answer.

[My-life in reply to EileenUSA]

Thank you. I feel like a pharmacy. Lol. Open my own store.

[gwillistexas in reply to EileenUSA]

I had total thyroidectomy at 14. Crazy. Kept in check for many many years. When my dad passed away in 2010 I felt run down. My b12 was depleted, Vit d was extremely low & thyroid was all jacked up. So it goes on & on. No simple answers. But we’re tough😊

[My-life in reply to gwillistexas]

Yes we are.

[gwillistexas in reply to My-life]

😉👍

[ninjagirlwebb]

I had a multi nodular thyroid goiter for many years but TSH was normal. However during a routine check up last March, my TSH was abnormally low which equates hyper thyroid.

Endocrinologist put me on methaziole (anti thyroid meds) after a nuclear thyroid scan. She indicated that most patients get back to normal 1-2 years on the meds. Well, my thyroid responded quickly & within 2 months it went to hypo on the meds. So we stop the meds & in Dec I was still slightly hypo. Doctor said my optimal level should be in the midpoint of the normal range since that was how it was before it went crazy on me. Have to get another blood test soon to see where it is at.

Haley

[My-life in reply to ninjagirlwebb]

Crazy things.

[mrart]

Thyroid issues are an autoimmune disorder just like PBC.

Autoimmune disorders tend to cluster in those prone to them. We are prone to them due to lower than normal levels of a certain enzyme or hormone in our bodies. There is resent research on this but no cure yet for the condition. The hope is to cure this underlying condition to prevent PBC and other autoimmune disorders. Unfortunately I can't find where I read about this to link it.

But it's a good idea to look for any signs of other autoimmune disorders in regular check ups. Working with your doctor to stay on top of your health is paramount.

Good luck!

[My-life in reply to mrart]

Yes my 2 others sisters have auto immune. One pasted away in sept from non hopkins lymph. My other sister has scuderma. Just so tired. Lol i buy toothpicks for my eyes when they are for sale.

[mrart]

Sorry to hear about your loss. We can only do what we can when dealing with chronic conditions. A sense of humor can help too!

[My-life]

Thank you. She accepted Christ before she passed.im try to keep a good attitude. Blessings