Cold!

[P13jne]

Hi does anyone else suffering with PBC have any issues with staying warm at different times? I’m either melting or so cold my feet and ankles are icy cold.

[butterflyEi]

I always used to run hot but now I am past menopause age and have lost quite a bit of weight I find I am more often cold and find it difficult to get warm even under the duvet.

[P13jne in reply to butterflyEi]

Hi ButterflyEi, I’ve lost over a stone in last few months, possibly all linked. I’ll just have to stay cocooned to keep warm, thanks Jane xx

[damiante in reply to butterflyEi]

Hello butterflyei, i have the same problem, only i am cold all over, even i f i take a hot shower, not everyday but sometimes, it takes me awhile to warm up,sometimes i think it's related with depression, anxiety.

[kiwivivr in reply to butterflyEi]

interesting questions and comments. I do have the feeling of hot sometimes but i think it is menopause related. i also do have times when my feet and lower legs have been unusually cold, but it has been while in bed, and i have been too tired to make an effort to get warm. (it is summer though, and the environment i s not cold, so it is odd).

[P13jne in reply to kiwivivr]

Hi, I initially put all the symptoms I had down to menopause. But my main problem started with lymph glands being huge in my neck, I had those removed and were all clear, thank goodness. Found out all relating to PBC. Lucky me.

[ninjagirlwebb]

Have you gotten your thyroid checked? Could be a hypo thyroid.

[P13jne in reply to ninjagirlwebb]

Hi Ninjagirlwebb, I have hypo thyroid. But the cold seems to be affecting me more lately. Jane

[ninjagirlwebb in reply to P13jne]

Hypo makes you cold. I asked my endocrinologist that. If you are on meds, might have to get endo to adjust to bring your TSH to a norm suitable for you. Sometimes the lab norms are not what your norm is because those are just averages. An astute endo will acknowledge that.

[P13jne in reply to ninjagirlwebb]

Thanks I’ll look into it x

[cazer]

Yes... Especially cold... I think a broken temp gauge is another symptom...

Def worse if I've done more or just eaten.

Sure my system does not have the capability of doing 2 things at once. Also once cold I find it nearly impossible to get warm again!!!

Hot flushes just as bad... Which may be put down to the menopause but.. I don't think it's that.

Sorry... I have no solutions...

Best wishes cazer xx

[P13jne]

Cazer,that’s exactly what I’m like. There seems to be more symptoms appearing daily. Jane x

[Arlie]

I’m freezing all the time , it’s terrible

[P13jne]

Hi Arlie, if I’m staying in the same place and not moving much I seem to be ok. Once I move about or god forbid, go outside, then I’m chilled to the bone, Jane

[Hidden in reply to P13jne]

I get that - takes a very long time to adjust to temp change. I need to be dressed for the outside weather/temp for several minutes before ready to go out otherwise be quickly shivery and sneezy when I leave house. Reverse when I return, have to strip outer clothes off fast after coming indoors or get too hot and uncomfortable. Always have to wear woollen socks even in bed or feet stone cold. Never used to have cold feet and never had body temp issues even with menopause. PBC = Poor Boiler Control?

[Twinkle26]

Yes I get that, I’ve gone past menopause so know it’s not that. I have reynards syndrome too now.

[P13jne in reply to Twinkle26]

Twinkle26, I’m hoping once the better weather arrives it’ll be a bit better. Hope this helps you with reynards too. X

[tinypixie]

Hi, P13jne,

I’m cold ALL the time, too. I don’t know if it is PBC-related. I have lost a lot of weight over the past few years so perhaps a low BMI is part of it. The best thing I have found lately is the purchase of a battery-heated vest. It’s made a huge difference. I’ve also purchased a heated throw/blanket which is also great. I also wear thin down-jackets under my outdoor coats. For your ankles, you could buy some ankle-warmers that are similar to what dancers use. I bought some very cheaply from Primark a few years ago.

The strange thing is that if the weather gets above about 80 degrees F I am suddenly so hot that I can’t stand it. My thermostat is definitely not working!

Let us know if you come up with any other solutions. Good luck!

[P13jne in reply to tinypixie]

Looks like both our thermostats are wonky thanks

[58goose]

I too am either freezing or boiling! I believe it's linked to the PBC but also that thyroid meds can cause hot flushes (I'm way past menopause so it's not that). Drives my husband mad when I keep altering the central heating or car heating controls!! Such fun - not!

[P13jne in reply to 58goose]

Thank you, I was thinking I was coming down with a cold or virus. This helps x

[Carrickgal]

I am always sweaty. So much so my hair is always soaking. It's so embarrassing

[P13jne in reply to Carrickgal]

Oh my, that sounds worse. It must be really uncomfortable for you x