Gilbert syndrome : Hi, does anyone have the... - PBC Foundation

PBC Foundation

9,480 members8,355 posts

Gilbert syndrome

Lekkerbek profile image
5 Replies

Hi, does anyone have the Gilbert syndrome and what blood results do I look at? Can I have PBC and Gilbert syndrome?

Written by
Lekkerbek profile image
Lekkerbek
To view profiles and participate in discussions please or .
5 Replies
Ballymahon2 profile image
Ballymahon2

Yes i think so you can get genetic test for gilberts i think a high bilirubin is an indication of gilberts hopefully others on the site can help you more

June9961 profile image
June9961

Hi, my husband has Gilberts and one of his sisters has just been diagnosed. It is high bilirubin that is an indicator. Apart from occasional yellowing of eyes it doesn't bother him and does not interefere with his daily life, unlike PBC which I have. He declares it at medical screening when buying travel insurance but there are never any questions on it and it doesn't affect the price. Hope this helps a little.

Lekkerbek profile image
Lekkerbek in reply toJune9961

Thank you very much

iagra profile image
iagra

The Gilbert syndrome has nothing to do with PBC. It can exist completely independently. Slightly elevated bilirubin is the marker for it.

MaireO profile image
MaireO

Hi there.

I was genetically screened for GS and it came back positive. As my bilirubin was high all the time it was very important for them to know whether or not it is high due to PBC or due to GS. I'm in the early stages of finding this out so I need to delve deeper. Hope this helps.

Not what you're looking for?

You may also like...

Crest syndrome

How do dr dx crest syndrome? What are the real symptoms? I have acid reflux and some times I have...
Sachin1234 profile image

Crest syndrome and PBC

Hi my doctor just informed me that I have crest syndrome along with my PBC! I have always had...
7WendyL profile image

Steroids for PBC/Hepatitis overlap syndrome

Just started 8 weeks of steroids for PBC/Hepatitis overlap syndrome, does anyone else have this...
Lindilou profile image

Vanishing Bile Duct Syndrome

Hi, I was just wondering if anyone on here has been diagnosed Vanishing Bile Duct Syndrome...
MSJT profile image

primary biliary cirrhosis/ autoimmune hepatitis lapover syndrome

Diagnosed with pbc / autoimmune hepatitis lapover syndrome . Anyone else have it and what is your...
cocobailey profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.