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PBC Foundation

9,401 members • 8,045 posts

All posts for June 2018

PBC and Life Expectancy

I read with interest the previous thread with a similar title and so I decided to start a separate thread. I have much to say on this topic that might be...

I read with interest the previous thread with a similar title and so I decided t...

PBCRobert

Partner•6 years ago

150 Replies

what to know

if u have antibodies but all numbers r normal range do i have pbc

oreo2016

•6 years ago

4 Replies

also can u have the antibodies...

also can u have the antibodies and not have the diease?

oreo2016

•6 years ago

1 Reply

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any info would be appreciated

i was diagnosed with pbc in 2016 i didnt trust my dr so i went for second opinion this dr took me of med urdasol dont know how to spell it anyways dr took...

i was diagnosed with pbc in 2016 i didnt trust my dr so i went for second opinio...

oreo2016

•6 years ago

7 Replies

Tendinitis

Hi everyone... I was diagnosed with PBC In December last year , am on urso and all seems fine but started having really bad leg pain just above my ankle, saw a...

Hi everyone... I was diagnosed with PBC In December last year , am on urso and a...

Jnuttall

•6 years ago

4 Replies

Protonix

They are switching me from nexium to Protonix.... does anyone else take this drug?

They are switching me from nexium to Protonix.... does anyone else take this dru...

Pamela4475

•6 years ago

5 Replies

Chicken & Liver Pain

Anyone experience liver pain after eating dark meat chicken and wgite meat skinless? I used to be able to eat by the buckets!!! Now, when I eat one piece my...

Anyone experience liver pain after eating dark meat chicken and wgite meat skinl...

Sdone

•6 years ago

2 Replies

Esophageal Varices

I have recently been diagnosed with esophageal varices does anyone in the group have these? The diagnosis has frightened me and would like to hear from...

I have recently been diagnosed with esophageal varices does anyone in the group...

JaniceK

•6 years ago

6 Replies

Butec morphine patches

Sorry on my previous post I had a typing error and my question was meant to be:. Is it safe to use Butec low dose morphine patches when you have PBC?

Sorry on my previous post I had a typing error and my question was meant to be:....

Rap-17

•6 years ago

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Butec morphine patches

Is it safe to use Butec low dose morphine patches with pvc?

Rap-17

•6 years ago

4 Replies

Life expectancy with PBC

I don’t want to panic anyone but yesterday when applying for travel insurance I Googled PBC and came across the following on Medicinenet.com in answer to how...

I don’t want to panic anyone but yesterday when applying for travel insurance I ...

Wingding

•6 years ago

45 Replies

PBC - High results

Hi everyone, apprx. 2 years i can not decrease my test results. Some of them are ; AST: 58 ALT: 104 GGT: 194 ALP :268 I'm using Ursactive, lipanthyl, 2 years...

Hi everyone, apprx. 2 years i can not decrease my test results. Some of them are...

bozcan

•6 years ago

7 Replies

Newly Diagnosed with PBC

Hi, Can someone explain these results? Thank you in advance. Liver (random biopsies): - The specimen is composed of cores of liver parenchyma showing changes...

Hi, Can someone explain these results? Thank you in advance. Liver (random bio...

staylor1776

•6 years ago

3 Replies

Doctors

Hi Every body Just to let you all know what my G.P said yesterday. He examined my abdomen and thought it would be a good idea to get an earlier app to see my...

Hi Every body Just to let you all know what my G.P said yesterday. He examined m...

Jude1

•6 years ago

2 Replies

Peripheral Neuropathy

I was wondering if anyone has neuropathy in feet and lower legs. I was diagnosed 5 years ago with PBC. I’ve had a EMG which determined small fiber sensory...

I was wondering if anyone has neuropathy in feet and lower legs. I was diagnosed...

Klross

•6 years ago

4 Replies

Pbc/Aih

Hope everybody is ok. Im week 4 on eatting healthy and feeling so much better. Hope everybody else is too. Also a day to work and then off for a week

Hope everybody is ok. Im week 4 on eatting healthy and feeling so much better. H...

janine541

•6 years ago

11 Replies

Crotch area

Anybody experienced burning and stinging in the crotch area ? Both legs right at the top , was convinced I’d got shingles but went to doctors after a week of...

Anybody experienced burning and stinging in the crotch area ? Both legs right at...

Steelie

•6 years ago

12 Replies

help

hi iv been on esa for 11 months in the work group at 130 every 2 weeks i just got a letter telling me iv been moved to support group am i able for...

hi iv been on esa for 11 months in the work group at 130 every 2 weeks i just go...

conj67

•6 years ago

3 Replies

Ultrasound with shear wave elastography

I live in the US, Washington state. Last year I did the first "Ultrasound with shear wave elastography", to monitor the state of PBC. It was incredibly...

I live in the US, Washington state. Last year I did the first "Ultrasound with s...

iagra

•6 years ago

10 Replies

Thank you

Just wanted to say thank you so much for this forum . So many lovely people to talk to. Thank you

Just wanted to say thank you so much for this forum . So many lovely people to t...

246810

•6 years ago

1 Reply

Normal Labs

I was diagnosed two and half years ago. I have been on Ursodiol 1500 mg a day. Just had labs completed. All labs are within normal range! I have stage 2...

I was diagnosed two and half years ago. I have been on Ursodiol 1500 mg a day. ...

Ellewoods33

•6 years ago

50 Replies

Pbc Aih

Hi everyone. Ive now got my head together with my diagnosis but would like to know if things are conected with the pbc. I have Bier disease and microvascular...

Hi everyone. Ive now got my head together with my diagnosis but would like to kn...

janine541

•6 years ago

2 Replies

Bovine Collagen Granuales Grass Fed/PBC

Hello, Has anyone heard of any reason why Bovine Collagen might not be advisable for PBC patients? I would like to take to help with joint pain and skin...

Hello, Has anyone heard of any reason why Bovine Collagen might not be advisable...

Sdone

•6 years ago

1 Reply

Thank You

Dear butterflyE1, 246810 and Ktitel Thanks for replying it all helps. I did go into the garden but did some tidying up and reorganising . Have taken all...

Dear butterflyE1, 246810 and Ktitel Thanks for replying it all helps. I did go i...

Jude1

•6 years ago

Be the first to reply

Ocaliva is working for me 🙌🏻🙌🏻

Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO...

Diagnosed around 5 years ago with PBC and was on 1500mg urso and nothing doing. ...

Alison2306

•6 years ago

23 Replies

Shaky and tired

Hello lovely people Can I ask if any one gets very shaky and light headed when they have over done things? Also I have to sit down for awhile too , but I don't...

Hello lovely people Can I ask if any one gets very shaky and light headed when t...

246810

•6 years ago

22 Replies

Helpfulness please

Hi Everyone Haven't been on here in ages although have read your posts. Feeling rather down in the dumps. Don't know where I'm going in the sense of my P.B.C...

Hi Everyone Haven't been on here in ages although have read your posts. Feeling ...

Jude1

•6 years ago

6 Replies

Nausea

Hi Hope everyone is feeling ok. Just recently I have been suffering from really bad nausea my ALT is raised but I have never had this feeling before. Hope...

Hi Hope everyone is feeling ok. Just recently I have been suffering from really...

Jayne1863

•6 years ago

4 Replies

Colangite Biliar Primária

Gostaria de saber qual o meio mais eficaz para diagnosticar a doença com precisão ?

Gostaria de saber qual o meio mais eficaz para diagnosticar a doença com precisã...

CBPT

•6 years ago

10 Replies

Marathon

Hi everyone. I know we are all on our own journey and I personally only dip in here from time to time. I’m 51 and was diagnosed 2 years ago. Mum of 2 age 8...

Hi everyone. I know we are all on our own journey and I personally only dip in h...

Paulajohno

•6 years ago

17 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2018

PBC and Life Expectancy

what to know

also can u have the antibodies...

any info would be appreciated

Tendinitis

Protonix

Chicken & Liver Pain

Esophageal Varices

Butec morphine patches

Butec morphine patches

Life expectancy with PBC

PBC - High results

Newly Diagnosed with PBC

Doctors

Peripheral Neuropathy

Pbc/Aih

Crotch area

help

Ultrasound with shear wave elastography

Thank you

Normal Labs

Pbc Aih

Bovine Collagen Granuales Grass Fed/PBC

Thank You

Ocaliva is working for me 🙌🏻🙌🏻

Shaky and tired

Helpfulness please

Nausea

Colangite Biliar Primária

Marathon

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