any info would be appreciated

[oreo2016]

i was diagnosed with pbc in 2016 i didnt trust my dr so i went for second opinion this dr took me of med urdasol dont know how to spell it anyways dr took complete blood panel and all blood came back within normal range except antibodies r high sr left it up to me if i wanted to go back on meds and idk what to do i have no symtoms there has not been a biopsy any info??

[Ballymahon2]

You need to see a hepatologist

[oreo2016 in reply to Ballymahon2]

what is the difference between the two drs?

[Ballymahon2 in reply to oreo2016]

A hep specialises in liver diseases

[tonia17]

I’d see the specialist...looking back I had a lot of symptoms but nothing anyone put together until my ALK PHOS was off the charts....in 2010 they were around 300 with one set of blood work...a normal ultra sound of my pancreas and another set of blood work (this time normal) it was chalked up to something I ate. 🙄

[kiwivivr]

I was completely blindsided with my diagnosis. I had not noticed any symptoms and detection was only random. I changed doctors as previous one only ever prescribed anti- biotics or pain killers. Never seemed to get to problem of whatever problem I presented with. and i decided it was time to find a female doctor. New doctor arranges blood tests, (maybe because I was new or because I had a UTI ). That's when all the fun began.

On diagnosis i was completely surprised as I felt fine

In retrospect i realised I had been very tired but assumed it was from the stress of work. I took a very long time to recover form jet lag after an overseas trip but I assumed this was age or menopause related. There had been one or two instances of itching but it was so random I brushed it aside thinking something in the laundering or menopause or maybe something I ate. Now i realise it was more likely PBC related.

After about 6 months (with no medications), some of the liver functions tests had come down but not quite into the right levels.

Now i am on Urso and liver function test are in correct range. yippee. now i have t watch my cholesterol though.

Try to have a fibroscan rather than a biopsy. biopsy are not very accurate and going out of favour with the doctors .

For me, it is a disease I have that I dont know I have. Sometimes i wonder if the diagnosis is correct as i have hardly any physical side effects, but I am a bit of a numbers nerd an so when I see the lab tests coming back into line, I accept doctors might know what they are doing. lol.

All the best with your journey down this crazy unexpected and unclear journey.

[SusanMarie63]

Find a hepatologist and ask for an MRE (magnetic resonance elastography). If you have PBC it will show 100% of your liver and where damage has occurred. There are videos on you tube that explain the procedure. It only takes two minutes and there are no side effects from a biopsy.

[Anne29]

definitely, I agree with Ballymahon2. Neither of the gps seem to know what they are dealing with and basically aren't finding out for you.