Peripheral Neuropathy

[Klross]

I was wondering if anyone has neuropathy in feet and lower legs. I was diagnosed 5 years ago with PBC. I’ve had a EMG which determined small fiber sensory neuropathy. I seem to be having a flare . I have pain that fluctuates from right knee to left ankle besides the tingling and numbness that is present. I also get muscle twitches constantly in my calves. Due to see neurologist In A few weeks. Thanks for sharing any experiences.

[Schnauzergirl]

I was diagnosed with CIDP not long after pbc. Not at all common, and as far as I know, not connected. I have infusions of Intragam every six weeks and my cidp is completely controlled.

[Klross in reply to Schnauzergirl]

Thanks for sharing. From research I've done there have been cases of neuropathy related to PBC. Small sensory fibers are usually affected. That's why I wondered how many others with PBC also have neuropathy.

[butterflyEi]

Hi Klross

I have been diagnosed with peripheral neuropathy and am medicated with Neurontin also known as Gabapentin. I am on a low dose of 3 X 100mg a day which keeps the discomfort in the feet rather than crawling up my legs as it was before.

best wishes

[Klross in reply to butterflyEi]

Thanks. Neurologist did put me on Gabapentan but said 300mg at night. Took first dose and felt very lightheaded in morning. Now trying 150mg nightly for a week working up to 300mg. May take it earlier in evening so side effect isn’t as pronounced in morning.